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Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): a prospective, controlled trial with a two-phase cohort design.
EClinicalMedicine. 2023 Oct 6;65:102260. doi: 10.1016/j.eclinm.2023.102260. eCollection 2023 Nov.
EClinicalMedicine. 2023.
PMID: 37855024
Free PMC article.
Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study.
Hebestreit H, Zeidler C, Schippers C, de Zwaan M, Deckert J, Heuschmann P, Krauth C, Bullinger M, Berger A, Berneburg M, Brandstetter L, Deibele A, Dieris-Hirche J, Graessner H, Gündel H, Herpertz S, Heuft G, Lapstich AM, Lücke T, Maisch T, Mundlos C, Petermann-Meyer A, Müller S, Ott S, Pfister L, Quitmann J, Romanos M, Rutsch F, Schaubert K, Schubert K, Schulz JB, Schweiger S, Tüscher O, Ungethüm K, Wagner TOF, Haas K; ZSE-DUO working group.
Hebestreit H, et al. Among authors: lapstich am.
Orphanet J Rare Dis. 2022 Feb 14;17(1):47. doi: 10.1186/s13023-022-02176-1.
Orphanet J Rare Dis. 2022.
PMID: 35164804
Free PMC article.
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The effectiveness of additional screening examinations for children and adolescents in Germany: a longitudinal retrospective cohort study.
Krüger K, Lapstich AM, Reber KC, Sehlen S, Liersch S, Krauth C.
Krüger K, et al. Among authors: lapstich am.
BMC Pediatr. 2023 Apr 11;23(1):164. doi: 10.1186/s12887-023-03988-1.
BMC Pediatr. 2023.
PMID: 37038135
Free PMC article.
Clinical Trial.
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Determinants for participation in a prevention and early detection programme for children and adolescents in Germany: does social background play a role?
Krüger K, Lapstich AM, Reber KC, Sehlen S, Liersch S, Krauth C.
Krüger K, et al. Among authors: lapstich am.
Arch Public Health. 2023 Aug 29;81(1):163. doi: 10.1186/s13690-023-01173-5.
Arch Public Health. 2023.
PMID: 37644482
Free PMC article.
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[Quality of Life and Experienced Distress of Patients Suspected of having a Rare (Chronic) Health Condition - Initial Findings from the ZSE-DUO Study].
Witt S, Kristensen K, Blömeke J, Hebestreit H, Wocker M, Pfister L, Bullinger M, Tüscher O, Deckert J, Graessner H, Lapstich AM, Zwaan M, Mundlos C, Quitmann JH.
Witt S, et al. Among authors: lapstich am.
Psychother Psychosom Med Psychol. 2023 Jan;73(1):9-15. doi: 10.1055/a-1814-3998. Epub 2022 Jul 6.
Psychother Psychosom Med Psychol. 2023.
PMID: 35793670
German.
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