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A core outcome domain set to assess cutaneous neurofibromas related to neurofibromatosis type 1 in clinical trials.
Fertitta L, Bergqvist C, Sarin KY, Plotkin SR, Moertel C, Petersen AK, Cannon A, Berman Y, Pichard DC, Röhl C, Lessing A, Brizion B, Peiffer B, Ravaud P, Tran VT, Armand ML, Moryousef S, Ferkal S, Jannic A, Ezzedine K, Wolkenstein P; Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) international collaboration. Fertitta L, et al. Br J Dermatol. 2024 Jan 23;190(2):216-225. doi: 10.1093/bjd/ljad397. Br J Dermatol. 2024. PMID: 37877514
Euthanasia--another view.
Koetsier K. Koetsier K. Aust Fam Physician. 1993 Jun;22(6):1094. Aust Fam Physician. 1993. PMID: 8338457 No abstract available.
Current Recommendations for Patient-Reported Outcome Measures Assessing Domains of Quality of Life in Neurofibromatosis Clinical Trials.
Wolters PL, Vranceanu AM, Thompson HL, Martin S, Merker VL, Baldwin A, Barnett C, Koetsier KS, Hingtgen CM, Funes CJ, Tonsgard JH, Schorry EK, Allen T, Smith T, Franklin B, Reeve S; REiNS International Collaboration. Wolters PL, et al. Among authors: koetsier ks. Neurology. 2021 Aug 17;97(7 Suppl 1):S50-S63. doi: 10.1212/WNL.0000000000012421. Epub 2021 Jul 6. Neurology. 2021. PMID: 34230198 Free PMC article.
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