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2016 2
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18 results

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Page 1
Reasons for non-participation in scleroderma support groups.
Delisle VC, Gumuchian ST, Pelaez S, Malcarne VL, El-Baalbaki G, Körner A, Hudson M, Baron M, Thombs BD; the Scleroderma Support Group Project Advisory Team. Delisle VC, et al. Clin Exp Rheumatol. 2016 Sep-Oct;34 Suppl 100(5):56-62. Epub 2016 Feb 25. Clin Exp Rheumatol. 2016. PMID: 26950221
Randomized Controlled Trial to Evaluate an Internet-Based Self-Management Program in Systemic Sclerosis.
Khanna D, Serrano J, Berrocal VJ, Silver RM, Cuencas P, Newbill SL, Battyany J, Maxwell C, Alore M, Dyas L, Riggs R, Connolly K, Kellner S, Fisher JJ, Bush E, Sachdeva A, Evnin L, Raisch DW, Poole JL. Khanna D, et al. Among authors: dyas l. Arthritis Care Res (Hoboken). 2019 Mar;71(3):435-447. doi: 10.1002/acr.23595. Epub 2019 Feb 5. Arthritis Care Res (Hoboken). 2019. PMID: 29741230 Free PMC article. Clinical Trial.
Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial.
Thombs BD, Dyas L, Pépin M, Aguila K, Carrier ME, Tao L, Harb S, Malcarne VL, El-Baalbaki G, Peláez S, Sauve M, Hudson M, Platt RW; SPIN-SSLED Patient Advisory Team. Thombs BD, et al. Among authors: dyas l. BMJ Open. 2019 Nov 11;9(11):e029935. doi: 10.1136/bmjopen-2019-029935. BMJ Open. 2019. PMID: 31719073 Free PMC article.
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial.
Thombs BD, Levis B, Carrier ME, Dyas L, Nordlund J, Tao L, Aguila K, Bourgeault A, Konrad V, Sauvé M, Connolly K, Henry RS, Østbø N, Levis AW, Kwakkenbos L, Malcarne VL, El-Baalbaki G, Hudson M, Wurz A, Culos-Reed SN, Platt RW, Benedetti A; SPIN-SSLED Support Group Leader Advisory Team. Thombs BD, et al. Among authors: dyas l. Orphanet J Rare Dis. 2022 Oct 28;17(1):396. doi: 10.1186/s13023-022-02552-x. Orphanet J Rare Dis. 2022. PMID: 36307891 Free PMC article. Clinical Trial.
A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members.
Wurz A, Duchek D, Ellis K, Bansal M, Carrier ME, Tao L, Dyas L, Kwakkenbos L, Levis B, El-Baalbaki G, Rice DB, Wu Y, Henry RS, Bustamante L, Harb S, Hebblethwaite S, Patten SB, Bartlett SJ, Varga J, Mouthon L, Markham S, Thombs BD, Culos-Reed SN; SPIN-CHAT Patient Advisory Team; Program Facilitators; Scleroderma Patient-centered Intervention Network Investigators. Wurz A, et al. Among authors: dyas l. Disabil Rehabil. 2024 Feb;46(3):533-545. doi: 10.1080/09638288.2023.2169775. Epub 2023 Jan 28. Disabil Rehabil. 2024. PMID: 36708187
Association of support group leader experience with Scleroderma Patient-centered Intervention Network Support group Leader EDucation Program outcomes: Secondary analysis of a two-arm parallel partially nested randomized controlled trial.
Thombs BD, Levis B, Carrier ME, Dyas L, Konrad V, Sauvé M, Benedetti A; SPIN-SSLED Support Group Advisory Team. Thombs BD, et al. Among authors: dyas l. J Scleroderma Relat Disord. 2024 Sep 4:23971983241272742. doi: 10.1177/23971983241272742. Online ahead of print. J Scleroderma Relat Disord. 2024. PMID: 39552943 Free PMC article.
Exploring research team members' and trial participants' perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study.
Wurz A, Ellis K, Duchek D, Bansal M, Carrier ME, Tao L, Dyas L, Kwakkenbos L, Levis B, El-Baalbaki G, Rice DB, Wu Y, Henry RS, Bustamante L, Harb S, Hebblethwaite S, Patten SB, Bartlett SJ, Varga J, Mouthon L, Markham S, Thombs BD, Culos-Reed SN; SPIN-CHAT Patient Advisory Team; Program Facilitators. Wurz A, et al. Among authors: dyas l. Transl Behav Med. 2023 Jul 1;13(7):442-452. doi: 10.1093/tbm/ibac091. Transl Behav Med. 2023. PMID: 36999812 Free PMC article.
Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-Sectional Study.
Gumuchian ST, Delisle VC, Peláez S, Malcarne VL, El-Baalbaki G, Kwakkenbos L, Jewett LR, Carrier ME, Pépin M, Thombs BD; the Scleroderma Support Group Project Advisory Team. Gumuchian ST, et al. Arthritis Care Res (Hoboken). 2018 Feb;70(2):275-283. doi: 10.1002/acr.23220. Epub 2018 Jan 11. Arthritis Care Res (Hoboken). 2018. PMID: 28217869
18 results