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Page 1
Early brain development in infants at high risk for autism spectrum disorder.
Hazlett HC, Gu H, Munsell BC, Kim SH, Styner M, Wolff JJ, Elison JT, Swanson MR, Zhu H, Botteron KN, Collins DL, Constantino JN, Dager SR, Estes AM, Evans AC, Fonov VS, Gerig G, Kostopoulos P, McKinstry RC, Pandey J, Paterson S, Pruett JR, Schultz RT, Shaw DW, Zwaigenbaum L, Piven J; IBIS Network; Clinical Sites; Data Coordinating Center; Image Processing Core; Statistical Analysis. Hazlett HC, et al. Nature. 2017 Feb 15;542(7641):348-351. doi: 10.1038/nature21369. Nature. 2017. PMID: 28202961 Free PMC article.
Variant Interpretation for Dilated Cardiomyopathy: Refinement of the American College of Medical Genetics and Genomics/ClinGen Guidelines for the DCM Precision Medicine Study.
Morales A, Kinnamon DD, Jordan E, Platt J, Vatta M, Dorschner MO, Starkey CA, Mead JO, Ai T, Burke W, Gastier-Foster J, Jarvik GP, Rehm HL, Nickerson DA, Hershberger RE; DCM Precision Medicine study of the DCM Consortium; DCM Consortium institutions and personnel participating in this study: Study Principal Investigator and Co-Investigators,DCM Consortium Clinical Site Principal Investigators and Clinical Site Other Significant Contributors (OSC). The following clinical sites and individuals contributed to the submission of RO 1 H L 128857 as Site Principal Investigators (Site Pl) or as Other Significant Contributors (OSC),Dr. Huggins also served as study co-principal investigator,The following clinical site was added following approval of NHGRI supplemental funding but prior to initiation of enrollment,The following clinical sites were added following study activation. Morales A, et al. Circ Genom Precis Med. 2020 Apr;13(2):e002480. doi: 10.1161/CIRCGEN.119.002480. Epub 2020 Mar 11. Circ Genom Precis Med. 2020. PMID: 32160020 Free PMC article.
Managing work flow in high enrolling trials: The development and implementation of a sampling strategy in the PREPARE trial.
Pogorzelski D, Nguyen U, McKay P, Thabane L, Camara M, Ramsey L, Seymour R, Goodman JB, McGee S, Fraifogl J, Hudgins A, Tanner SL, Bhandari M, Slobogean GP, Sprague S; PREP-IT Investigators Executive Committee:; Steering Committee; Adjudication Committee; Data and Safety Monitoring Committee; Research Methodology Core; Patient Centred Outcomes Core; Orthopaedic Surgery Core; Operating Room Core; Infectious Disease Core; Military Core; McMaster University Methods Center; University of Maryland School of Medicine Administrative Center; University of Maryland School of Pharmacy, The PATIENTS Program; PREP-IT Clinical Sites: Lead Clinical Site (Aqueous-PREP and PREPARE); Aqueous-PREP and PREPARE; Aqueous-PREP; PREPARE; PREP-IT Investigators Executive Committee. Pogorzelski D, et al. Contemp Clin Trials Commun. 2021 Jan 23;21:100730. doi: 10.1016/j.conctc.2021.100730. eCollection 2021 Mar. Contemp Clin Trials Commun. 2021. PMID: 33605946 Free PMC article.
Childhood Trauma increases suicidal behaviour in a treatment-resistant depression population: a FACE-DR report.
Yrondi A, Vaiva G, Walter M, D Amato T, Bellivier F, Bennabi D, Bougerol T, Camus V, Doumy O, Genty JB, Haffen E, Holtzmann J, Horn M, Lançon C, Leboyer M, Llorca PM, Maruani J, Moirand R, Molière F, Petrucci J, Richieri R, Samalin L, Schmitt L, Stephan F; FondaMental Advanced Centers of Expertise in Resistant Depression (FACE-DR); Courtet P, El-Hage W, Aouizerate B; List of FondaMental Advanced Centre of Expertise (FACE-DR) collaborators; FACE-DR Clinical Sites and Principal Collaborators in France. Yrondi A, et al. J Psychiatr Res. 2021 Mar;135:20-27. doi: 10.1016/j.jpsychires.2020.12.055. Epub 2020 Dec 23. J Psychiatr Res. 2021. PMID: 33440292
Clinical predictors of recurrences in bipolar disorders type 1 and 2: A FACE-BD longitudinal study.
Etain B, Bellivier F, Olié E, Aouizerate B, Aubin V, Belzeaux R, Courtet P, Dubertret C, Schwan R, Roux P, Polosan M, Leboyer M, Godin O; FondaMental Advanced Center of Expertise for Bipolar Disorders (FACE-BD); FACE-BD Clinical Sites and Principal Collaborators in France. Etain B, et al. J Psychiatr Res. 2021 Feb;134:129-137. doi: 10.1016/j.jpsychires.2020.12.041. Epub 2020 Dec 16. J Psychiatr Res. 2021. PMID: 33385631
Implementing stakeholder engagement to explore alternative models of consent: An example from the PREP-IT trials.
Pechero G Jr, Pfaff B, Rao M, Pogorzelski D, McKay P, Spicer E, Howe A, Demyanovich HK, Sietsema DL, McTague MF, Ramsey L, Holden M, Rudnicki J, Wells J, Medeiros M, Slobogean GP, Sprague S; PREP-IT Investigators; Slobogean GP, Sprague S, Wells J, Bhandari M; Steering Committee; Adjudication Committee; Data and Safety Monitoring Committee; Research Methodology Core; Patient Centred Outcomes Core; Orthopaedic Surgery Core; Operating Room Core; Infectious Disease Core; Military Core; PREP-IT Clinical Sites; O'Toole RV, D'Alleyrand JC, Eglseder A, Johnson A, Langhammer C, Lebrun C, Manson T, Nascone J, Paryavi E, Pensy R, Pollak A, Sciadini M, Slobogean GP, Degani Y, Demyanovich HK, Howe A, O'Hara NN, Joseph K, Rudnicki J, Camara M; Aqueous-PREP and PREPARE; Aqueous-PREP; PREPARE. Pechero G Jr, et al. Contemp Clin Trials Commun. 2021 Jun 14;22:100787. doi: 10.1016/j.conctc.2021.100787. eCollection 2021 Jun. Contemp Clin Trials Commun. 2021. PMID: 34195467 Free PMC article.
Baseline characteristics and factors associated with nutritional and pulmonary status at enrollment in the cystic fibrosis EPIC observational cohort.
Rosenfeld M, Emerson J, McNamara S, Joubran K, Retsch-Bogart G, Graff GR, Gutierrez HH, Kanga JF, Lahiri T, Noyes B, Ramsey B, Ren CL, Schechter M, Morgan W, Gibson RL; EPIC Study Group Participating Clinical Sites. Rosenfeld M, et al. Pediatr Pulmonol. 2010 Sep;45(9):934-44. doi: 10.1002/ppul.21279. Pediatr Pulmonol. 2010. PMID: 20597081
Childhood trauma, dimensions of psychopathology and the clinical expression of bipolar disorders: A pathway analysis.
Etain B, Lajnef M, Henry C, Aubin V, Azorin JM, Bellivier F, Bougerol T, Courtet P, Gard S, Kahn JP, Passerieux C, Leboyer M; FACE-BD Clinical Coordinating Center (FondaMental Foundation); FACE-BD Data Coordinating Center (FondaMental Foundation); FACE-BD Clinical Sites and Principal Collaborators in France. Etain B, et al. J Psychiatr Res. 2017 Dec;95:37-45. doi: 10.1016/j.jpsychires.2017.07.013. Epub 2017 Jul 29. J Psychiatr Res. 2017. PMID: 28777981