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The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation.
Waddington C, Harding E, Brotherhood EV, Davies Abbott I, Barker S, Camic PM, Ezeofor V, Gardner H, Grillo A, Hardy C, Hoare Z, McKee-Jackson R, Moore K, O'Hara T, Roberts J, Rossi-Harries S, Suarez-Gonzalez A, Sullivan MP, Edwards RT, Van Der Byl Williams M, Walton J, Willoughby A, Windle G, Winrow E, Wood O, Zimmermann N, Crutch SJ, Stott J. Waddington C, et al. Among authors: windle g. JMIR Res Protoc. 2022 Jul 20;11(7):e35376. doi: 10.2196/35376. JMIR Res Protoc. 2022. PMID: 35857375 Free PMC article.
'The oxygen of shared experience': exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias.
Harding E, Rossi-Harries S, Alterkawi S, Waddington C, Grillo A, Wood O, Brotherhood EV, Windle G, Sullivan MP, Camic PM, Stott J, Crutch SJ. Harding E, et al. Among authors: windle g. Aging Ment Health. 2023 Sep-Oct;27(10):1912-1928. doi: 10.1080/13607863.2023.2194848. Epub 2023 Mar 31. Aging Ment Health. 2023. PMID: 36999880
Protocol for the Rare Dementia Support Impact study: RDS Impact.
Brotherhood EV, Stott J, Windle G, Barker S, Culley S, Harding E, Camic PM, Caufield M, Ezeofor V, Hoare Z, McKee-Jackson R, Roberts J, Sharp R, Suarez-Gonzalez A, Sullivan MP, Tudor Edwards R, Walton J, Waddington C, Winrow E, Crutch SJ. Brotherhood EV, et al. Among authors: windle g. Int J Geriatr Psychiatry. 2020 Aug;35(8):833-841. doi: 10.1002/gps.5253. Epub 2020 Feb 17. Int J Geriatr Psychiatry. 2020. PMID: 31876030 Clinical Trial.
Peer support for people living with rare or young onset dementia: An integrative review.
Sullivan MP, Williams V, Grillo A, McKee-Jackson R, Camic PM, Windle G, Stott J, Brotherhood E, Crutch SJ; Rare Dementia Support (RDS) research team. Sullivan MP, et al. Among authors: windle g. Dementia (London). 2022 Nov;21(8):2700-2726. doi: 10.1177/14713012221126368. Epub 2022 Sep 16. Dementia (London). 2022. PMID: 36114712 Free PMC article. Review.
'Misdiagnosed and Misunderstood': Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry.
Camic PM, Sullivan MP, Harding E, Gould M, Wilson L, Rossi-Harries S, Grillo A, McKee-Jackson R, Cox SM, Stott J, Brotherhood EV, Windle G, Crutch SJ. Camic PM, et al. Among authors: windle g. Healthcare (Basel). 2024 Feb 17;12(4):485. doi: 10.3390/healthcare12040485. Healthcare (Basel). 2024. PMID: 38391860 Free PMC article.
62 results