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Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results.
Saraceno D, Chronaki C, Cangioli G, Filbert AL, Muraca M, Berti A, Rielli R, Thomopulos N, Knoerr L, Walz D, Neumann A, Beccaria A, Aulicino A, Nicolas B, Cavalca G, Uyttebroeck A, van Helvoirt M, Brié T, Vanden Meersch E, Ladenstein R, Bardi E, Schreier G, Beyer S, Müllner-Rieder M, Tormo Alcañiz MT, Cervero Beltran L, Rascon J, Kapitančukė M, Trinkūnas J, Stukaitė-Ruibienė E, Ragauskas P, Ciesiūnienė A, Haupt R, Grabow D. Saraceno D, et al. Among authors: thomopulos n. Stud Health Technol Inform. 2024 Aug 22;316:1280-1284. doi: 10.3233/SHTI240646. Stud Health Technol Inform. 2024. PMID: 39176615
IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey.
de Beijer IAE, van den Oever SR, Charalambous E, Cangioli G, Balaguer J, Bardi E, Alfes M, Cañete Nieto A, Correcher M, Pinto da Costa T, Degelsegger-Márquez A, Düster V, Filbert AL, Grabow D, Gredinger G, Gsell H, Haupt R, van Helvoirt M, Ladenstein R, Langer T, Laschkolnig A, Muraca M, Pluijm SMF, Rascon J, Schreier G, Tomášikova Z, Trauner F, Trinkūnas J, Trunner K, Uyttebroeck A, Kremer LCM, van der Pal HJH, Chronaki C; PanCareSurPass Consortium. de Beijer IAE, et al. J Med Internet Res. 2024 May 2;26:e49910. doi: 10.2196/49910. J Med Internet Res. 2024. PMID: 38696248 Free PMC article.
European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline.
de Beijer IAE, Skinner R, Haupt R, Grabow D, Bardi E, Beccaria A, Nieto AC, Essiaf S, Filbert AL, Gsell H, Kienesberger A, Langer T, McColgan P, Muraca M, Rascon J, Tallone R, Tomasikova Z, Uyttebroeck A, Kremer LCM, van der Pal HJH, Mulder RL; PanCareSurPass consortium. de Beijer IAE, et al. J Cancer Surviv. 2023 Dec 4. doi: 10.1007/s11764-023-01493-z. Online ahead of print. J Cancer Surviv. 2023. PMID: 38048011
Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study.
van den Oever SR, de Beijer IAE, Kremer LCM, Alfes M, Balaguer J, Bardi E, Nieto AC, Cangioli G, Charalambous E, Chronaki C, Costa T, Degelsegger A, Düster V, Filbert AL, Grabow D, Gredinger G, Gsell H, Haupt R, van Helvoirt M, Ladenstein R, Langer T, Laschkolnig A, Muraca M, Rascon J, Schreier G, Tomasikova Z, Tormo MT, Trinkunas J, Trollip J, Trunner K, Uyttebroeck A, van der Pal HJH, Pluijm SMF; PanCareSurPass consortium. van den Oever SR, et al. J Cancer Surviv. 2024 Jun;18(3):928-940. doi: 10.1007/s11764-023-01335-y. Epub 2023 Feb 20. J Cancer Surviv. 2024. PMID: 36808389