Gooch K - Search Results

1

"You Take This Day by Day, Come What May": A Qualitative Study of the Psychosocial Impacts of Living with Duchenne Muscular Dystrophy.

Bever A, Audhya I, Szabo SM, Mickle A, Feeny D, Malone D, Neumann P, Iannaccone S, Gooch K. Bever A, et al. Among authors: gooch k. Adv Ther. 2024 Jun;41(6):2460-2476. doi: 10.1007/s12325-024-02867-0. Epub 2024 May 6. Adv Ther. 2024. PMID: 38709395 Free PMC article.

2

Assessing the impact of single or short-term administration on a therapy's cost-effectiveness: a hypothetical disease-agnostic model.

Klimchak AC, Sedita LE, Gooch KL, Malone DC. Klimchak AC, et al. J Med Econ. 2023 Jan-Dec;26(1):594-602. doi: 10.1080/13696998.2023.2200102. J Med Econ. 2023. PMID: 37026587 Free article.

3

Assessing the value of delandistrogene moxeparvovec (SRP-9001) gene therapy in patients with Duchenne muscular dystrophy in the United States.

Klimchak AC, Sedita LE, Rodino-Klapac LR, Mendell JR, McDonald CM, Gooch KL, Malone DC. Klimchak AC, et al. J Mark Access Health Policy. 2023 May 26;11(1):2216518. doi: 10.1080/20016689.2023.2216518. eCollection 2023. J Mark Access Health Policy. 2023. PMID: 37261034 Free PMC article.

4

Exploring the relationship between North Star Ambulatory Assessment and Health Utilities Index scores in Duchenne muscular dystrophy.

Audhya I, Rogula B, Szabo SM, Feeny D, Bolatova T, Gooch K. Audhya I, et al. Among authors: gooch k. Health Qual Life Outcomes. 2023 Jul 19;21(1):76. doi: 10.1186/s12955-023-02160-8. Health Qual Life Outcomes. 2023. PMID: 37468890 Free PMC article. Clinical Trial.

5

Patterns of Clinical Progression Among Patients With Autosomal Recessive Limb-Girdle Muscular Dystrophy: A Systematic Review.

Cheung A, Audhya IF, Szabo SM, Friesen M, Weihl CC, Gooch KL. Cheung A, et al. J Clin Neuromuscul Dis. 2023 Dec 1;25(2):65-80. doi: 10.1097/CND.0000000000000461. J Clin Neuromuscul Dis. 2023. PMID: 37962193

6

A qualitative study to understand the Duchenne muscular dystrophy experience from the parent/patient perspective.

Brown V, Merikle E, Johnston K, Gooch K, Audhya I, Lowes L. Brown V, et al. Among authors: gooch k. J Patient Rep Outcomes. 2023 Dec 12;7(1):129. doi: 10.1186/s41687-023-00669-6. J Patient Rep Outcomes. 2023. PMID: 38085412 Free PMC article.

7

Estimating health state utilities in Duchenne muscular dystrophy using the health utilities index and EQ-5D-5L.

Audhya IF, Szabo SM, Bever A, O'Sullivan F, Malone DC, Feeny D, Neumann P, Iannaccone ST, Jayasinghe P, Gooch KL. Audhya IF, et al. Among authors: gooch kl. J Patient Rep Outcomes. 2023 Dec 15;7(1):132. doi: 10.1186/s41687-023-00671-y. J Patient Rep Outcomes. 2023. PMID: 38100005 Free PMC article.

8

Comparing Preferences for Disease Profiles: A Discrete Choice Experiment from a US Societal Perspective.

Johnston KM, Audhya IF, Dunne J, Feeny D, Neumann P, Malone DC, Szabo SM, Gooch KL. Johnston KM, et al. Among authors: gooch kl. Appl Health Econ Health Policy. 2024 May;22(3):343-352. doi: 10.1007/s40258-023-00869-7. Epub 2024 Jan 23. Appl Health Econ Health Policy. 2024. PMID: 38253973 Free PMC article.

9

Observing the Clinical Course of Duchenne Muscular Dystrophy in Medicaid Real-World Healthcare Data.

Qian C, Klimchak AC, Szabo SM, Popoff E, Iannaccone ST, Gooch KL. Qian C, et al. Among authors: gooch kl. Adv Ther. 2024 Jun;41(6):2519-2530. doi: 10.1007/s12325-024-02865-2. Epub 2024 May 2. Adv Ther. 2024. PMID: 38698169 Free PMC article.

10

Current Challenges of Using Patient-Level Claims and Electronic Health Record Data for the Longitudinal Evaluation of Duchenne Muscular Dystrophy Outcomes.

Gooch KL, Audhya I, Ricchetti-Masterson K, Szabo SM. Gooch KL, et al. Adv Ther. 2024 Sep;41(9):3615-3632. doi: 10.1007/s12325-024-02897-8. Epub 2024 Jul 30. Adv Ther. 2024. PMID: 39080221 Free PMC article.

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