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Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for ultra-rare inherited bleeding disorders.
Nugent D, Acharya SS, Baumann KJ, Bedrosian C, Bialas R, Brown K, Corzo D, Haidar A, Hayward CPM, Marks P, Menegatti M, Miller ME, Nammacher K, Palla R, Peltier S, Pruthi RK, Recht M, Sørensen B, Tarantino M, Wolberg AS, Shapiro AD. Nugent D, et al. Among authors: acharya ss. Expert Rev Hematol. 2023 Mar;16(sup1):55-70. doi: 10.1080/17474086.2023.2175661. Expert Rev Hematol. 2023. PMID: 36920862 Free PMC article.
Natural history study of factor IX deficiency with focus on treatment and complications (B-Natural).
Shapiro AD, Ragni MV, Borhany M, Abajas YL, Tarantino MD, Holstein K, Croteau SE, Liesner R, Tarango C, Carvalho M, McGuinn C, Funding E, Kempton CL, Bidlingmaier C, Cohen A, Oldenburg J, Kearney S, Knoll C, Kuriakose P, Acharya S, Reiss UM, Kulkarni R, Witkop M, Lethagen S, Donfield S, LeBeau P, Berntorp E, Astermark J. Shapiro AD, et al. Haemophilia. 2021 Jan;27(1):49-59. doi: 10.1111/hae.14139. Epub 2020 Dec 5. Haemophilia. 2021. PMID: 33278853
Quality of life in a large multinational haemophilia B cohort (The B-Natural study) - Unmet needs remain.
Berntorp E, LeBeau P, Ragni MV, Borhany M, Abajas YL, Tarantino MD, Holstein K, Croteau SE, Liesner R, Tarango C, Carvalho M, McGuinn C, Funding E, Kempton CL, Bidlingmaier C, Cohen A, Oldenburg J, Kearney S, Knoll C, Kuriakose P, Acharya S, Reiss UM, Kulkarni R, Witkop M, Lethagen S, Krouse R, Shapiro AD, Astermark J. Berntorp E, et al. Haemophilia. 2022 May;28(3):453-461. doi: 10.1111/hae.14525. Epub 2022 Mar 8. Haemophilia. 2022. PMID: 35263495 Free PMC article.
Impact of HIV on liver fibrosis in men with hepatitis C infection and haemophilia.
Ragni MV, Moore CG, Soadwa K, Nalesnik MA, Zajko AB, Cortese-Hassett A, Whiteside TL, Hart S, Zeevi A, Li J, Shaikh OS; HHH Study Group. Ragni MV, et al. Haemophilia. 2011 Jan;17(1):103-11. doi: 10.1111/j.1365-2516.2010.02366.x. Epub 2010 Aug 16. Haemophilia. 2011. PMID: 20722744 Free PMC article.
Bleeding Disorders in Congenital Syndromes.
Sarangi SN, Acharya SS. Sarangi SN, et al. Among authors: acharya ss. Pediatrics. 2017 Feb;139(2):e20154360. doi: 10.1542/peds.2015-4360. Epub 2017 Jan 6. Pediatrics. 2017. PMID: 28062601 Review.
Management of rare coagulation disorders in 2018.
Jain S, Acharya SS. Jain S, et al. Among authors: acharya ss. Transfus Apher Sci. 2018 Dec;57(6):705-712. doi: 10.1016/j.transci.2018.10.009. Epub 2018 Oct 30. Transfus Apher Sci. 2018. PMID: 30392819 Review.
Multicenter randomized controlled trial on Duration of Therapy for Thrombosis in Children and Young Adults (the Kids-DOTT trial): pilot/feasibility phase findings.
Goldenberg NA, Abshire T, Blatchford PJ, Fenton LZ, Halperin JL, Hiatt WR, Kessler CM, Kittelson JM, Manco-Johnson MJ, Spyropoulos AC, Steg PG, Stence NV, Turpie AG, Schulman S; Kids-DOTT Trial Investigators. Goldenberg NA, et al. J Thromb Haemost. 2015 Sep;13(9):1597-605. doi: 10.1111/jth.13038. Epub 2015 Aug 11. J Thromb Haemost. 2015. PMID: 26118944 Free PMC article. Clinical Trial.
97 results