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Page 1
Quality of life, health-related quality of life, and associated factors in Huntington's disease: a systematic review.
van Lonkhuizen PJC, Frank W, Heemskerk AW, van Duijn E, de Bot ST, Mühlbäck A, Landwehrmeyer GB, Chavannes NH, Meijer E; HEALTHE-RND consortium. van Lonkhuizen PJC, et al. Among authors: heemskerk aw. J Neurol. 2023 May;270(5):2416-2437. doi: 10.1007/s00415-022-11551-8. Epub 2023 Jan 30. J Neurol. 2023. PMID: 36715747 Free PMC article. Review.
Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design Approach.
van Lonkhuizen PJC, Vegt NJH, Meijer E, van Duijn E, de Bot ST, Klempíř J, Frank W, Landwehrmeyer GB, Mühlbäck A, Hoblyn J, Squitieri F, Foley P, Chavannes NH, Heemskerk AW. van Lonkhuizen PJC, et al. Among authors: heemskerk aw. Front Neurol. 2021 Sep 13;12:719460. doi: 10.3389/fneur.2021.719460. eCollection 2021. Front Neurol. 2021. PMID: 34589047 Free PMC article.
Palliative care in advanced Huntington's disease: a scoping review.
Boersema-Wijma DJ, van Duijn E, Heemskerk AW, van der Steen JT, Achterberg WP. Boersema-Wijma DJ, et al. Among authors: heemskerk aw. BMC Palliat Care. 2023 May 3;22(1):54. doi: 10.1186/s12904-023-01171-y. BMC Palliat Care. 2023. PMID: 37138329 Free PMC article. Review.
Development of the Huntington Support App (HD-eHelp study): a human-centered and co-design approach.
van Lonkhuizen PJC, Heemskerk AW, Meijer E, van Duijn E, de Bot ST, Klempir J, Landwehrmeyer GB, Mühlbäck A, Hoblyn J, Squitieri F, Chavannes NH, Vegt NJH; HEALTHE-RND consortium. van Lonkhuizen PJC, et al. Among authors: heemskerk aw. Front Neurol. 2024 Jul 1;15:1399126. doi: 10.3389/fneur.2024.1399126. eCollection 2024. Front Neurol. 2024. PMID: 39011363 Free PMC article.
Dysphagia in Huntington's disease: a review.
Heemskerk AW, Roos RA. Heemskerk AW, et al. Dysphagia. 2011 Mar;26(1):62-6. doi: 10.1007/s00455-010-9302-4. Epub 2010 Sep 14. Dysphagia. 2011. PMID: 20838817 Review.
The Huntington's Disease Dysphagia Scale.
Heemskerk AW, Verbist BM, Marinus J, Heijnen B, Sjögren EV, Roos RA. Heemskerk AW, et al. Mov Disord. 2014 Sep;29(10):1312-6. doi: 10.1002/mds.25922. Epub 2014 May 23. Mov Disord. 2014. PMID: 24862624
Shifting focus from ideality to reality: a qualitative study on how quality of life is defined by premanifest and manifest Huntington's disease gene expansion carriers.
van Lonkhuizen PJC, Heemskerk AW, Slutter L, van Duijn E, de Bot ST, Chavannes NH, Meijer E; HEALTHE-RND consortium. van Lonkhuizen PJC, et al. Among authors: heemskerk aw. Orphanet J Rare Dis. 2024 Nov 29;19(1):444. doi: 10.1186/s13023-024-03461-x. Orphanet J Rare Dis. 2024. PMID: 39614274 Free PMC article.