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Page 1
Exploring patient's experience and unmet needs on pregnancy and family planning in rare and complex connective tissue diseases: a narrative medicine approach.
Marinello D, Zucchi D, Palla I, Aguilera S, Galetti I, Holmner M, Sandulescu S, Scarle L, Tremarias D, Bouillot C, Cattaneo L, Gaglioti A, Ticciati S, Brucato A, Khamashta M, Shoenfeld Y, Tincani A, Talarico R, Tani C, Mosca M. Marinello D, et al. RMD Open. 2022 Dec;8(2):e002643. doi: 10.1136/rmdopen-2022-002643. RMD Open. 2022. PMID: 36597980 Free PMC article.
Clinical practice guidelines adherence, knowledge and awareness in rare and complex connective tissue diseases across Europe: results from the first ERN ReCONNET survey.
Talarico R, Marinello D, Bombardieri S, Burmester G, Fonseca J, Frank C, Galetti I, Hachulla E, Houssiau F, Mueller-Ladner U, Schneider M, Smith V, Turchetti G, van Laar JM, Vieira A, Cutolo M, Mosca M. Talarico R, et al. Among authors: marinello d. RMD Open. 2020 Aug;6(2):0. doi: 10.1136/rmdopen-2020-001344. RMD Open. 2020. PMID: 32868449 Free PMC article.
RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks.
Talarico R, Cannizzo S, Lorenzoni V, Marinello D, Palla I, Pirri S, Ticciati S, Trieste L, Triulzi I, Terol E, Bucher A, Turchetti G. Talarico R, et al. Among authors: marinello d. Orphanet J Rare Dis. 2020 Dec 14;15(1):347. doi: 10.1186/s13023-020-01631-1. Orphanet J Rare Dis. 2020. PMID: 33317578 Free PMC article.
The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Talarico R, Aguilera S, Alexander T, Amoura Z, Antunes AM, Arnaud L, Avcin T, Beretta L, Bombardieri S, Burmester GR, Cannizzo S, Cavagna L, Chaigne B, Cornet A, Costedoat-Chalumeau N, Doria A, Ferraris A, Fischer-Betz R, Fonseca JE, Frank C, Gaglioti A, Galetti I, Grunert J, Guimarães V, Hachulla E, Houssiau F, Iaccarino L, Krieg T, Limper M, Malfait F, Mariette X, Marinello D, Martin T, Matthews L, Matucci-Cerinic M, Meyer A, Montecucco C, Mouthon L, Müller-Ladner U, Rednic S, Romão VC, Schneider M, Smith V, Sulli A, Tamirou F, Taruscio D, Taulaigo AV, Terol E, Tincani A, Ticciati S, Turchetti G, van Hagen PM, van Laar JM, Vieira A, de Vries-Bouwstra JK, Cutolo M, Mosca M. Talarico R, et al. Among authors: marinello d. Nat Rev Rheumatol. 2021 Mar;17(3):177-184. doi: 10.1038/s41584-020-00565-z. Epub 2021 Jan 6. Nat Rev Rheumatol. 2021. PMID: 33408338 Free PMC article. Review.
Correction to: RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks.
Talarico R, Cannizzo S, Lorenzoni V, Marinello D, Palla I, Pirri S, Ticciati S, Trieste L, Triulzi I, Terol E, Bucher A, Turchetti G. Talarico R, et al. Among authors: marinello d. Orphanet J Rare Dis. 2021 Mar 22;16(1):146. doi: 10.1186/s13023-021-01778-5. Orphanet J Rare Dis. 2021. PMID: 33752690 Free PMC article. No abstract available.
Adherence to treatment in Behçet's syndrome: a multi-faceted issue.
Pirri S, Marinello D, Lorenzoni V, Andreozzi G, Bazzani A, Del Bianco A, Turchetti G, Mosca M, Talarico R. Pirri S, et al. Among authors: marinello d. Clin Exp Rheumatol. 2021 Sep-Oct;39 Suppl 132(5):88-93. doi: 10.55563/clinexprheumatol/1lx7a5. Epub 2021 Sep 30. Clin Exp Rheumatol. 2021. PMID: 34596034 Free article.
Being a caregiver of a Behçet's syndrome patient: challenges and perspectives during a complex journey.
Talarico R, Marinello D, Manzo A, Cannizzo S, Palla I, Ticciati S, Gaglioti A, Trieste L, Pisa L, Badalamenti L, Randisi G, Del Bianco A, Lorenzoni V, Turchetti G, Mosca M. Talarico R, et al. Among authors: marinello d. Orphanet J Rare Dis. 2021 Oct 18;16(1):436. doi: 10.1186/s13023-021-02070-2. Orphanet J Rare Dis. 2021. PMID: 34663419 Free PMC article.
40 results