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How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting.
Breckenridge K, Bekker HL, Gibbons E, van der Veer SN, Abbott D, Briançon S, Cullen R, Garneata L, Jager KJ, Lønning K, Metcalfe W, Morton RL, Murtagh FE, Prutz K, Robertson S, Rychlik I, Schon S, Sharp L, Speyer E, Tentori F, Caskey FJ. Breckenridge K, et al. Among authors: caskey fj. Nephrol Dial Transplant. 2015 Oct;30(10):1605-14. doi: 10.1093/ndt/gfv209. Epub 2015 May 16. Nephrol Dial Transplant. 2015. PMID: 25982327 Free PMC article.
Challenges in conducting clinical trials in nephrology: conclusions from a Kidney Disease-Improving Global Outcomes (KDIGO) Controversies Conference.
Baigent C, Herrington WG, Coresh J, Landray MJ, Levin A, Perkovic V, Pfeffer MA, Rossing P, Walsh M, Wanner C, Wheeler DC, Winkelmayer WC, McMurray JJV; KDIGO Controversies Conference on Challenges in the Conduct of Clinical Trials in Nephrology Conference Participants. Baigent C, et al. Kidney Int. 2017 Aug;92(2):297-305. doi: 10.1016/j.kint.2017.04.019. Kidney Int. 2017. PMID: 28709600 Free PMC article.
Access to kidney transplantation in European adults aged 75-84 years and related outcomes: an analysis of the European Renal Association-European Dialysis and Transplant Association Registry.
Pippias M, Stel VS, Kramer A, Abad Diez JM, Aresté-Fosalba N, Ayav C, Buturovic J, Caskey FJ, Collart F, Couchoud C, De Meester J, Heaf JG, Helanterä I, Hemmelder MH, Kostopoulou M, Noordzij M, Pascual J, Palsson R, Reisaeter AV, Traynor JP, Massy Z, Jager KJ. Pippias M, et al. Among authors: caskey fj. Transpl Int. 2018 May;31(5):540-553. doi: 10.1111/tri.13125. Epub 2018 Mar 2. Transpl Int. 2018. PMID: 29383764 Free article.
Report of the Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Consensus Workshop on Establishing a Core Outcome Measure for Hemodialysis Vascular Access.
Viecelli AK, Tong A, O'Lone E, Ju A, Hanson CS, Sautenet B, Craig JC, Manns B, Howell M, Chemla E, Hooi LS, Johnson DW, Lee T, Lok CE, Polkinghorne KR, Quinn RR, Vachharajani T, Vanholder R, Zuo L, Hawley CM; SONG-HD Vascular Access Workshop Investigators. Viecelli AK, et al. Am J Kidney Dis. 2018 May;71(5):690-700. doi: 10.1053/j.ajkd.2017.12.003. Epub 2018 Feb 23. Am J Kidney Dis. 2018. PMID: 29478866 Review.
Establishing a Core Outcome Measure for Fatigue in Patients on Hemodialysis: A Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Consensus Workshop Report.
Ju A, Unruh M, Davison S, Dapueto J, Dew MA, Fluck R, Germain M, Jassal SV, Obrador G, O'Donoghue D, Josephson MA, Craig JC, Viecelli A, O'Lone E, Hanson CS, Manns B, Sautenet B, Howell M, Reddy B, Wilkie C, Rutherford C, Tong A; SONG-HD Fatigue Workshop Collaborators. Ju A, et al. Am J Kidney Dis. 2018 Jul;72(1):104-112. doi: 10.1053/j.ajkd.2017.12.018. Epub 2018 Mar 16. Am J Kidney Dis. 2018. PMID: 29551585
Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop.
Tong A, Manns B, Wang AYM, Hemmelgarn B, Wheeler DC, Gill J, Tugwell P, Pecoits-Filho R, Crowe S, Harris T, Van Biesen W, Winkelmayer WC, Levin A, Thompson A, Perkovic V, Ju A, Gutman T, Bernier-Jean A, Viecelli AK, O'Lone E, Shen J, Josephson MA, Cho Y, Johnson DW, Sautenet B, Tonelli M, Craig JC; SONG Implementation Workshop Investigators. Tong A, et al. Kidney Int. 2018 Dec;94(6):1053-1068. doi: 10.1016/j.kint.2018.08.018. Epub 2018 Oct 22. Kidney Int. 2018. PMID: 30360959 Free PMC article.
International consensus definitions of clinical trial outcomes for kidney failure: 2020.
Levin A, Agarwal R, Herrington WG, Heerspink HL, Mann JFE, Shahinfar S, Tuttle KR, Donner JA, Jha V, Nangaku M, de Zeeuw D, Jardine MJ, Mahaffey KW, Thompson AM, Beaucage M, Chong K, Roberts GV, Sunwold D, Vorster H, Warren M, Damster S, Malik C, Perkovic V; participant authors of the International Society of Nephrology’s 1st International Consensus Meeting on Defining Kidney Failure in Clinical Trials. Levin A, et al. Kidney Int. 2020 Oct;98(4):849-859. doi: 10.1016/j.kint.2020.07.013. Kidney Int. 2020. PMID: 32998816 Free article.
Validation of a Core Patient-Reported Outcome Measure for Life Participation in Kidney Transplant Recipients: the SONG Life Participation Instrument.
Jaure A, Vastani RT, Teixeira-Pinto A, Ju A, Craig JC, Viecelli AK, Scholes-Robertson N, Josephson MA, Ahn C, Butt Z, Caskey FJ, Dobbels F, Fowler K, Jowsey-Gregoire S, Jha V, Tan JC, Sautenet B, Howell M. Jaure A, et al. Among authors: caskey fj. Kidney Int Rep. 2023 Nov 3;9(1):87-95. doi: 10.1016/j.ekir.2023.10.018. eCollection 2024 Jan. Kidney Int Rep. 2023. PMID: 38312789 Free PMC article.
Capacity for the management of kidney failure in the International Society of Nephrology Western Europe region: report from the 2023 ISN Global Kidney Health Atlas (ISN-GKHA).
Pippias M, Alfano G, Kelly DM, Soler MJ, De Chiara L, Olanrewaju TO, Arruebo S, Bello AK, Caskey FJ, Damster S, Donner JA, Jha V, Johnson DW, Levin A, Malik C, Nangaku M, Okpechi IG, Tonelli M, Ye F, Coppo R, Lightstone L; Regional Board and ISN-GKHA Team Authors. Pippias M, et al. Among authors: caskey fj. Kidney Int Suppl (2011). 2024 Apr;13(1):136-151. doi: 10.1016/j.kisu.2024.01.008. Epub 2024 Apr 8. Kidney Int Suppl (2011). 2024. PMID: 38618502 Free PMC article. Review.
206 results