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Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.
Proc Natl Acad Sci U S A. 2022 Jan 25;119(4):e2115860119. doi: 10.1073/pnas.2115860119.
Proc Natl Acad Sci U S A. 2022.
PMID: 35042810
Free PMC article.
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson M, Garrison NA, Sterling R, Caron NR, Fox K, Yracheta J, Anderson J, Wilcox P, Arbour L, Brown A, Taualii M, Kukutai T, Haring R, Te Aika B, Baynam GS, Dearden PK, Chagné D, Malhi RS, Garba I, Tiffin N, Bolnick D, Stott M, Rolleston AK, Ballantyne LL, Lovett R, David-Chavez D, Martinez A, Sporle A, Walter M, Reading J, Carroll SR.
Hudson M, et al.
Nat Rev Genet. 2020 Jun;21(6):377-384. doi: 10.1038/s41576-020-0228-x. Epub 2020 Apr 6.
Nat Rev Genet. 2020.
PMID: 32251390
Review.
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Genomic discrimination in New Zealand health and life insurance. AGenDA: Against Genomic Discrimination in Aotearoa.
Shelling AN, Bicknell LS, Bohlander SS, Cox MP, Filoche SK, Fraser HG, Gamet K, Lacaze P, Murphy R, Snell RG, Sporle A, Te Aika B, Purcell RV, Tiller JM.
Shelling AN, et al.
N Z Med J. 2022 Mar 11;135(1551):7-12.
N Z Med J. 2022.
PMID: 35728166
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