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Study protocol for a randomised clinical trial of a decision aid and values clarification method for parents of a fetus or neonate diagnosed with a life-threatening congenital heart defect.
Delaney RK, Pinto NM, Ozanne EM, Stark LA, Pershing ML, Thorpe A, Witteman HO, Thokala P, Lambert LM, Hansen LM, Greene TH, Fagerlin A. Delaney RK, et al. Among authors: pinto nm. BMJ Open. 2021 Dec 10;11(12):e055455. doi: 10.1136/bmjopen-2021-055455. BMJ Open. 2021. PMID: 34893487 Free PMC article.
Parents' decision-making for their foetus or neonate with a severe congenital heart defect.
Delaney RK, Pinto NM, Ozanne EM, Brown H, Stark LA, Watt MH, Karasawa M, Patel A, Donofrio MT, Steltzer MM, Miller SG, Zickmund SL, Fagerlin A. Delaney RK, et al. Among authors: pinto nm. Cardiol Young. 2022 Jun;32(6):896-903. doi: 10.1017/S1047951121003218. Epub 2021 Aug 19. Cardiol Young. 2022. PMID: 34407894 Free PMC article.
Provider insights on shared decision-making with families affected by CHD.
Pinto NM, Patel A, Delaney RK, Donofrio MT, Marino BS, Miller S, Ozanne EM, Zickmund SL, Karasawa MH, Pershing ML, Fagerlin A. Pinto NM, et al. Cardiol Young. 2021 Nov 3:1-8. doi: 10.1017/S1047951121004406. Online ahead of print. Cardiol Young. 2021. PMID: 34728001 Free PMC article.
74 results