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Initial Results from a Pilot Comparative Effectiveness Study of 3 Methotrexate-based Consensus Treatment Plans for Juvenile Localized Scleroderma.
Li SC, Torok KS, Rabinovich CE, Dedeoglu F, Becker ML, Ferguson PJ, Hong SD, Ibarra MF, Stewart K, Pope E, Higgins GC, Laxer RM, Mason T 2nd, Fuhlbrigge RC, Andrews T; CARRA Registry Investigators. Li SC, et al. Among authors: higgins gc. J Rheumatol. 2020 Aug 1;47(8):1242-1252. doi: 10.3899/jrheum.190311. Epub 2019 Oct 15. J Rheumatol. 2020. PMID: 31615917
New Features for Measuring Disease Activity in Pediatric Localized Scleroderma.
Li SC, Li X, Pope E, Stewart K, Higgins GC, Rabinovich CE, O'Neil KM, Haines KA, Laxer RM, Punaro M, Jacobe H, Andrews T, Wittkowski K, Nyirenda T, Foeldvari I, Torok KS. Li SC, et al. Among authors: higgins gc. J Rheumatol. 2018 Dec;45(12):1680-1688. doi: 10.3899/jrheum.171381. Epub 2018 Sep 15. J Rheumatol. 2018. PMID: 30219769
Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study.
Li SC, Fuhlbrigge RC, Laxer RM, Pope E, Ibarra MF, Stewart K, Mason T 2nd, Becker ML, Hong S, Dedeoglu F, Torok KS, Rabinovich CE, Ferguson PJ, Punaro M, Feldman BM, Andrews T, Higgins GC; CARRA Registry Investigators. Li SC, et al. Among authors: higgins gc. Pediatr Rheumatol Online J. 2019 Jul 15;17(1):43. doi: 10.1186/s12969-019-0350-5. Pediatr Rheumatol Online J. 2019. PMID: 31307476 Free PMC article.
Extracutaneous involvement is common and associated with prolonged disease activity and greater impact in juvenile localized scleroderma.
Li SC, Higgins GC, Chen M, Torok KS, Rabinovich CE, Stewart K, Laxer RM, Pope E, Haines KA, Punaro M, O'Neil KM; Childhood Arthritis and Rheumatology Research Alliance Localized Scleroderma Clinical and Ultrasound Study group. Li SC, et al. Among authors: higgins gc. Rheumatology (Oxford). 2021 Dec 1;60(12):5724-5733. doi: 10.1093/rheumatology/keab238. Rheumatology (Oxford). 2021. PMID: 33711155
Development of consensus treatment plans for juvenile localized scleroderma: a roadmap toward comparative effectiveness studies in juvenile localized scleroderma.
Li SC, Torok KS, Pope E, Dedeoglu F, Hong S, Jacobe HT, Rabinovich CE, Laxer RM, Higgins GC, Ferguson PJ, Lasky A, Baszis K, Becker M, Campillo S, Cartwright V, Cidon M, Inman CJ, Jerath R, O'Neil KM, Vora S, Zeft A, Wallace CA, Ilowite NT, Fuhlbrigge RC; Childhood Arthritis and Rheumatology Research Alliance (CARRA) Localized Scleroderma Workgroup. Li SC, et al. Among authors: higgins gc. Arthritis Care Res (Hoboken). 2012 Aug;64(8):1175-85. doi: 10.1002/acr.21687. Arthritis Care Res (Hoboken). 2012. PMID: 22505322 Free PMC article.
Proceedings of the 2016 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting : Toronto, Canada. 14-17 April 2016.
Fotis L, Shaikh N, Baszis K, French A, Tarr P, Grevich S, Lee P, Ringold S, Leroux B, Leahey H, Yuasa M, Foster J, Sokolove J, Lahey L, Robinson W, Newsom J, Stevens A, Karasawa R, Tamaki M, Tanaka M, Sato T, Yudoh K, Jarvis JN, Moncrieffe H, Bennett MF, Tsoras M, Luyrink L, Xu H, Prahalad S, Morris P, Dare J, Nigrovic PA, Rosenkranz M, Becker M, O’Neil KM, Griffin T, Lovell DJ, Grom AA, Medvedovic M, Thompson SD, Zhu L, Jiang K, Wong L, Buck MJ, Chen Y, Moncrieffe H, Brungs L, Liu T, Wang T, Jarvis JN, Alsaeid K, Alfailakawi J, Alenezi H, Alsaeed H, Beukelman T, Natter M, Ilowite N, Mieszkalski K, Burrell G, Best B, Bristow H, Carr S, Dennos A, Kaufmann R, Kimura Y, Schanberg L, Blier PR, Boneparth A, Wenderfer SE, Moorthy LN, Radhakrishna SM, Sagcal-Gironella ACP, von Scheven E, Gedik KC, Siddique S, Aguiar CL, Erkan D, Cohen E, Lee Y, Dossett M, Mehta D, Davis R, Gilbert M, Goilav B, Meidan E, Hsu J, Boneparth A, Chua A, Ardoin S, Wenderfer SE, Von Scheven E, Ruth NM, Hui-Yuen J, Gedik KC, Bermudez L, Cook A, Imundo L, Starr A, Eichenfield A, Askanase A, Janow G, Schanberg LE, Setoguchi S, Hasselblad V, Mellins ED, Schneider R, Kimura Y; The CARRA Legacy Registry Investigators;… See abstract for full author list ➔ Fotis L, et al. Among authors: higgins g, higgins gc. Pediatr Rheumatol Online J. 2016 Jul 12;14 Suppl 1(Suppl 1):41. doi: 10.1186/s12969-016-0098-0. Pediatr Rheumatol Online J. 2016. PMID: 27409414 Free PMC article.
Clinical Characteristics and Factors Associated With Disability and Impaired Quality of Life in Children With Juvenile Systemic Sclerosis: Results From the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry.
Stevens BE, Torok KS, Li SC, Hershey N, Curran M, Higgins GC, Moore KF, Egla Rabinovich C, Dodson S, Stevens AM; Childhood Arthritis and Rheumatology Research Alliance Registry Investigators. Stevens BE, et al. Among authors: higgins gc. Arthritis Care Res (Hoboken). 2018 Dec;70(12):1806-1813. doi: 10.1002/acr.23547. Epub 2018 Nov 8. Arthritis Care Res (Hoboken). 2018. PMID: 29457372 Free PMC article.
The localized scleroderma skin severity index and physician global assessment of disease activity: a work in progress toward development of localized scleroderma outcome measures.
Arkachaisri T, Vilaiyuk S, Li S, O'Neil KM, Pope E, Higgins GC, Punaro M, Rabinovich EC, Rosenkranz M, Kietz DA, Rosen P, Spalding SJ, Hennon TR, Torok KS, Cassidy E, Medsger TA Jr; Localized Scleroderma Clinical and Ultrasound Study Group. Arkachaisri T, et al. Among authors: higgins gc. J Rheumatol. 2009 Dec;36(12):2819-29. doi: 10.3899/jrheum.081284. Epub 2009 Oct 15. J Rheumatol. 2009. PMID: 19833758 Free PMC article.
102 results