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Page 1
Systematic review of body image measures.
Kling J, Kwakkenbos L, Diedrichs PC, Rumsey N, Frisén A, Brandão MP, Silva AG, Dooley B, Rodgers RF, Fitzgerald A. Kling J, et al. Among authors: kwakkenbos l. Body Image. 2019 Sep;30:170-211. doi: 10.1016/j.bodyim.2019.06.006. Epub 2019 Aug 6. Body Image. 2019. PMID: 31394462
Support and information needs of people with systemic sclerosis by time since diagnosis: A cross-sectional study.
Provencher S, Henry RS, Bacalao C, Carrier ME, Kwakkenbos L, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) Support Group Project Advisory Team. Provencher S, et al. Among authors: kwakkenbos l. J Scleroderma Relat Disord. 2023 Oct;8(3):247-252. doi: 10.1177/23971983231181726. Epub 2023 Jun 21. J Scleroderma Relat Disord. 2023. PMID: 37744044 Free PMC article.
Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study.
Wojeck RK, Knisely MR, Bailey DE, Somers TJ, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Malcarne VL, Hudson M, Levis B, Benedetti A, Mouthon L, Thombs BD, Silva SG; SPIN Investigators. Wojeck RK, et al. Among authors: kwakkenbos l. EClinicalMedicine. 2023 Jul 20;62:102104. doi: 10.1016/j.eclinm.2023.102104. eCollection 2023 Aug. EClinicalMedicine. 2023. PMID: 37533421 Free PMC article.
Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study.
Adams C, Nassar EL, Carrier ME, Kwakkenbos L, Henry RS, Virgili-Gervais G, Hu S, Bartlett SJ, Fortuné C, Gietzen A, Gottesman K, Guillot G, Hudson M, Lawrie-Jones A, Lewis N, Malcarne V, Mayes MD, Patten SB, Richard M, Sauvé M, Varga J, Welling J, Wojeck R, Mouthon L, Benedetti A, Thombs BD; SPIN Investigators. Adams C, et al. Among authors: kwakkenbos l. J Scleroderma Relat Disord. 2024 Oct;9(3):242-247. doi: 10.1177/23971983241262655. Epub 2024 Aug 5. J Scleroderma Relat Disord. 2024. PMID: 39381050
Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership.
Dal Santo T, Golberg M, Nassar EL, Carrier ME, Hu S, Kwakkenbos L, Bartlett SJ, Fox RS, Lee YC, Varga J, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network Pain Patient Advisory Team. Dal Santo T, et al. Among authors: kwakkenbos l. BMC Rheumatol. 2024 Jun 21;8(1):28. doi: 10.1186/s41927-024-00398-3. BMC Rheumatol. 2024. PMID: 38907303 Free PMC article.
The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study.
Virgili-Gervais G, Matthews B, Nassar EL, Carrier ME, Kwakkenbos L, Pauling JD, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Lawrie-Jones A, Malcarne VL, Mayes MD, Richard M, Sauvé M, Wojeck RK, Mouthon L, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network investigators. Virgili-Gervais G, et al. Among authors: kwakkenbos l. Lancet Rheumatol. 2024 Oct;6(10):e684-e692. doi: 10.1016/S2665-9913(24)00189-9. Epub 2024 Aug 28. Lancet Rheumatol. 2024. PMID: 39216493
Association of COVID-19 vaccination and anxiety symptoms: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort longitudinal study.
Virgili-Gervais G, Henry RS, Kwakkenbos L, Carrier ME, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team; SPIN Investigators. Virgili-Gervais G, et al. Among authors: kwakkenbos l. J Psychosom Res. 2024 Sep;184:111852. doi: 10.1016/j.jpsychores.2024.111852. Epub 2024 Jun 23. J Psychosom Res. 2024. PMID: 38936011 Free article.
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD; SPIN Investigators. Neyer MA, et al. Among authors: kwakkenbos l. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. Arthritis Care Res (Hoboken). 2023. PMID: 37128826
Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial.
Thombs BD, Levis B, Carrier ME, Dyas L, Nordlund J, Tao L, Aguila K, Bourgeault A, Konrad V, Sauvé M, Connolly K, Henry RS, Østbø N, Levis AW, Kwakkenbos L, Malcarne VL, El-Baalbaki G, Hudson M, Wurz A, Culos-Reed SN, Platt RW, Benedetti A; SPIN-SSLED Support Group Leader Advisory Team. Thombs BD, et al. Among authors: kwakkenbos l. Orphanet J Rare Dis. 2022 Oct 28;17(1):396. doi: 10.1186/s13023-022-02552-x. Orphanet J Rare Dis. 2022. PMID: 36307891 Free PMC article. Clinical Trial.
136 results