Werlauff U - Search Results

1

Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey.

Beernaert K, Lövgren M, Jeppesen J, Werlauff U, Rahbek J, Sejersen T, Kreicbergs U. Beernaert K, et al. Among authors: werlauff u. J Child Neurol. 2019 Mar;34(4):210-215. doi: 10.1177/0883073818822900. Epub 2019 Jan 15. J Child Neurol. 2019. PMID: 30642225

2

266th ENMC International Workshop: Remote delivery of clinical care and validation of remote clinical outcome assessments in neuromuscular disorders: A response to COVID-19 and proactive planning for the future. Hoofddorp, The Netherlands, 1-3 April 2022.

Alfano LN, James MK, Ramdharry GM, Lowes LP; 266th ENMC Workshop Study Group. Alfano LN, et al. Neuromuscul Disord. 2023 Apr;33(4):339-348. doi: 10.1016/j.nmd.2023.02.011. Epub 2023 Mar 4. Neuromuscul Disord. 2023. PMID: 36965197 No abstract available.

3

Development of a patient-reported outcome measure for upper limb function in Duchenne muscular dystrophy: DMD Upper Limb PROM.

Klingels K, Mayhew AG, Mazzone ES, Duong T, Decostre V, Werlauff U, Vroom E, Mercuri E, Goemans NM; Upper Limb Clinical Outcome Group. Klingels K, et al. Among authors: werlauff u. Dev Med Child Neurol. 2017 Feb;59(2):224-231. doi: 10.1111/dmcn.13277. Epub 2016 Sep 26. Dev Med Child Neurol. 2017. PMID: 27671699 Free article.

4

Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.

Hjorth E, Kreicbergs U, Sejersen T, Jeppesen J, Werlauff U, Rahbek J, Lövgren M. Hjorth E, et al. Among authors: werlauff u. J Child Neurol. 2019 Feb;34(2):104-112. doi: 10.1177/0883073818811544. Epub 2018 Dec 5. J Child Neurol. 2019. PMID: 30518279

5

Parents' advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups.

Hjorth E, Kreicbergs U, Sejersen T, Werlauff U, Rahbek J, Lövgren M. Hjorth E, et al. Among authors: werlauff u. J Child Health Care. 2022 Sep;26(3):407-421. doi: 10.1177/13674935211015561. Epub 2021 May 17. J Child Health Care. 2022. PMID: 33998314

6

Physical characteristics and applicability of standard assessment methods in a total population of spinal muscular atrophy type II patients.

Werlauff U, Steffensen BF, Bertelsen S, Fløytrup I, Kristensen B, Werge B. Werlauff U, et al. Neuromuscul Disord. 2010 Jan;20(1):34-43. doi: 10.1016/j.nmd.2009.11.008. Epub 2009 Dec 6. Neuromuscul Disord. 2010. PMID: 19969460

7

Change in muscle strength over time in spinal muscular atrophy types II and III. A long-term follow-up study.

Werlauff U, Vissing J, Steffensen BF. Werlauff U, et al. Neuromuscul Disord. 2012 Dec;22(12):1069-74. doi: 10.1016/j.nmd.2012.06.352. Epub 2012 Nov 3. Neuromuscul Disord. 2012. PMID: 23127961

8

Fatigue in patients with spinal muscular atrophy type II and congenital myopathies: evaluation of the fatigue severity scale.

Werlauff U, Højberg A, Firla-Holme R, Steffensen BF, Vissing J. Werlauff U, et al. Qual Life Res. 2014 Jun;23(5):1479-88. doi: 10.1007/s11136-013-0565-8. Epub 2013 Nov 9. Qual Life Res. 2014. PMID: 24214178

9

The applicability of four clinical methods to evaluate arm and hand function in all stages of spinal muscular atrophy type II.

Werlauff U, Fynbo Steffensen B. Werlauff U, et al. Disabil Rehabil. 2014;36(25):2120-6. doi: 10.3109/09638288.2014.892157. Epub 2014 Mar 3. Disabil Rehabil. 2014. PMID: 24579651

10

Impact of the COVID-19 pandemic on biopsychosocial health and quality of life among Danish children and adults with neuromuscular diseases (NMD)-Patient reported outcomes from a national survey.

Handberg C, Werlauff U, Højberg AL, Knudsen LF. Handberg C, et al. Among authors: werlauff u. PLoS One. 2021 Jun 30;16(6):e0253715. doi: 10.1371/journal.pone.0253715. eCollection 2021. PLoS One. 2021. PMID: 34191825 Free PMC article.

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