Holm IA - Search Results

1

Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.

Pereira S, Robinson JO, Gutierrez AM, Petersen DK, Hsu RL, Lee CH, Schwartz TS, Holm IA, Beggs AH, Green RC, McGuire AL; BabySeq Project Group. Pereira S, et al. Among authors: holm ia. Pediatrics. 2019 Jan;143(Suppl 1):S6-S13. doi: 10.1542/peds.2018-1099C. Pediatrics. 2019. PMID: 30600265 Free PMC article. Clinical Trial.

2

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.

Harris ED, Ziniel SI, Amatruda JG, Clinton CM, Savage SK, Taylor PL, Huntington NL, Green RC, Holm IA. Harris ED, et al. Among authors: holm ia. Genet Med. 2012 Mar;14(3):330-7. doi: 10.1038/gim.2011.25. Epub 2012 Jan 26. Genet Med. 2012. PMID: 22241099 Free PMC article.

3

Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.

Holm IA, Savage SK, Green RC, Juengst E, McGuire A, Kornetsky S, Brewster SJ, Joffe S, Taylor P. Holm IA, et al. Genet Med. 2014 Jul;16(7):547-52. doi: 10.1038/gim.2013.190. Epub 2014 Jan 9. Genet Med. 2014. PMID: 24406460 Free article.

4

Return of genomic results to research participants: the floor, the ceiling, and the choices in between.

Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group; Burke W. Jarvik GP, et al. Among authors: holm ia. Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8. Am J Hum Genet. 2014. PMID: 24814192 Free PMC article.

5

Parents are interested in newborn genomic testing during the early postpartum period.

Waisbren SE, Bäck DK, Liu C, Kalia SS, Ringer SA, Holm IA, Green RC. Waisbren SE, et al. Among authors: holm ia. Genet Med. 2015 Jun;17(6):501-4. doi: 10.1038/gim.2014.139. Epub 2014 Dec 4. Genet Med. 2015. PMID: 25474344 Free PMC article.

6

The development of a preference-setting model for the return of individual genomic research results.

Bacon PL, Harris ED, Ziniel SI, Savage SK, Weitzman ER, Green RC, Huntington NL, Holm IA. Bacon PL, et al. Among authors: holm ia. J Empir Res Hum Res Ethics. 2015 Apr;10(2):107-20. doi: 10.1177/1556264615572092. Epub 2015 Feb 20. J Empir Res Hum Res Ethics. 2015. PMID: 25742675

7

Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.

Holm IA, Iles BR, Ziniel SI, Bacon PL, Savage SK, Christensen KD, Weitzman ER, Green RC, Huntington NL. Holm IA, et al. J Empir Res Hum Res Ethics. 2015 Oct;10(4):414-26. doi: 10.1177/1556264615599620. J Empir Res Hum Res Ethics. 2015. PMID: 26376753 Free PMC article. Clinical Trial.

8

When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.

Brothers KB, Holm IA, Childerhose JE, Antommaria AHM, Bernhardt BA, Clayton EW, Gelb BD, Joffe S, Lynch JA, McCormick JB, McCullough LB, Parsons DW, Sundaresan AS, Wolf WA, Yu JH, Wilfond BS; Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium. Brothers KB, et al. Among authors: holm ia. J Pediatr. 2016 Jan;168:226-231.e1. doi: 10.1016/j.jpeds.2015.09.020. Epub 2015 Oct 23. J Pediatr. 2016. PMID: 26477867 Free PMC article. No abstract available.

9

Expectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative Interview Study.

Cacioppo CN, Chandler AE, Towne MC, Beggs AH, Holm IA. Cacioppo CN, et al. Among authors: holm ia. PLoS One. 2016 Apr 15;11(4):e0153597. doi: 10.1371/journal.pone.0153597. eCollection 2016. PLoS One. 2016. PMID: 27082877 Free PMC article.

10

Family health history reporting is sensitive to small changes in wording.

Conway-Pearson LS, Christensen KD, Savage SK, Huntington NL, Weitzman ER, Ziniel SI, Bacon P, Cacioppo CN, Green RC, Holm IA. Conway-Pearson LS, et al. Among authors: holm ia. Genet Med. 2016 Dec;18(12):1308-1311. doi: 10.1038/gim.2016.45. Epub 2016 May 5. Genet Med. 2016. PMID: 27148937 Free PMC article.

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