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Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.
Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA; members of the NSIGHT Ethics and Policy Advisory Board. Johnston J, et al. Among authors: goldenberg a. Hastings Cent Rep. 2018 Jul;48 Suppl 2(Suppl 2):S2-S6. doi: 10.1002/hast.874. Hastings Cent Rep. 2018. PMID: 30133723 Free PMC article.
Addressing the ethical challenges in genetic testing and sequencing of children.
Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. Clayton EW, et al. Am J Bioeth. 2014;14(3):3-9. doi: 10.1080/15265161.2013.879945. Am J Bioeth. 2014. PMID: 24592828 Free PMC article.
Parents' interest in whole-genome sequencing of newborns.
Goldenberg AJ, Dodson DS, Davis MM, Tarini BA. Goldenberg AJ, et al. Genet Med. 2014 Jan;16(1):78-84. doi: 10.1038/gim.2013.76. Epub 2013 Jun 6. Genet Med. 2014. PMID: 23743552 Free PMC article.
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
Erikainen S, Friesen P, Rand L, Jongsma K, Dunn M, Sorbie A, McCoy M, Bell J, Burgess M, Chen H, Chico V, Cunningham-Burley S, Darbyshire J, Dawson R, Evans A, Fahy N, Finlay T, Frith L, Goldenberg A, Hinton L, Hoppe N, Hughes N, Koenig B, Lignou S, McGowan M, Parker M, Prainsack B, Shabani M, Staunton C, Thompson R, Varnai K, Vayena E, Williams O, Williamson M, Chan S, Sheehan M. Erikainen S, et al. Among authors: goldenberg a. J Med Ethics. 2020 Oct 6:medethics-2020-106530. doi: 10.1136/medethics-2020-106530. Online ahead of print. J Med Ethics. 2020. PMID: 33023977 Free article.
Genomic newborn screening: public health policy considerations and recommendations.
Friedman JM, Cornel MC, Goldenberg AJ, Lister KJ, Sénécal K, Vears DF; Global Alliance for Genomics and Health Regulatory and Ethics Working Group Paediatric Task Team. Friedman JM, et al. BMC Med Genomics. 2017 Feb 21;10(1):9. doi: 10.1186/s12920-017-0247-4. BMC Med Genomics. 2017. PMID: 28222731 Free PMC article.
660 results