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Prevalence of dystrophic epidermolysis bullosa in Spain: a population-based study using the 3-source capture-recapture method. Evidence of a need for improvement in care.
Actas Dermosifiliogr. 2013 Dec;104(10):890-6. doi: 10.1016/j.ad.2013.03.006. Epub 2013 Jun 27.
Actas Dermosifiliogr. 2013.
PMID: 23809583
Free article.
Reference centers for epidermolysis bullosa and ichthyosis: an urgent need in Spain.
Hernández-Martin A, de Lucas R, Vicente A, Baselga E, Morcillo-Makow E, Arroyo Manzanal MI, Abaitua I, Torrelo A.
Hernández-Martin A, et al. Among authors: morcillo makow e.
Actas Dermosifiliogr. 2013 Jun;104(5):363-6. doi: 10.1016/j.adengl.2013.04.001. Epub 2013 May 10.
Actas Dermosifiliogr. 2013.
PMID: 23665435
Free article.
English, Spanish.
No abstract available.
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Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? an example of priority setting partnership in very rare disorders.
Davila-Seijo P, Hernández-Martín A, Morcillo-Makow E, de Lucas R, Domínguez E, Romero N, Monrós E, Feito M, Carretero L, Aranegui B, García-Doval I.
Davila-Seijo P, et al. Among authors: morcillo makow e.
Orphanet J Rare Dis. 2013 Apr 22;8:61. doi: 10.1186/1750-1172-8-61.
Orphanet J Rare Dis. 2013.
PMID: 23607806
Free PMC article.
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Current dystrophic epidermolysis bullosa research does not match research needs perceived by patients and clinicians.
Davila-Seijo P, Hernández-Martín Á, Morcillo-Makow E, Rajan C, García-Doval I.
Davila-Seijo P, et al. Among authors: morcillo makow e.
J Am Acad Dermatol. 2014 Nov;71(5):1008-11. doi: 10.1016/j.jaad.2014.05.038. Epub 2014 Oct 15.
J Am Acad Dermatol. 2014.
PMID: 25437964
No abstract available.
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