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An i2b2-based, generalizable, open source, self-scaling chronic disease registry.
Natter MD, Quan J, Ortiz DM, Bousvaros A, Ilowite NT, Inman CJ, Marsolo K, McMurry AJ, Sandborg CI, Schanberg LE, Wallace CA, Warren RW, Weber GM, Mandl KD. Natter MD, et al. J Am Med Inform Assoc. 2013 Jan 1;20(1):172-9. doi: 10.1136/amiajnl-2012-001042. Epub 2012 Jun 25. J Am Med Inform Assoc. 2013. PMID: 22733975 Free PMC article.
Consensus treatment plans for new-onset systemic juvenile idiopathic arthritis.
DeWitt EM, Kimura Y, Beukelman T, Nigrovic PA, Onel K, Prahalad S, Schneider R, Stoll ML, Angeles-Han S, Milojevic D, Schikler KN, Vehe RK, Weiss JE, Weiss P, Ilowite NT, Wallace CA; Juvenile Idiopathic Arthritis Disease-specific Research Committee of Childhood Arthritis Rheumatology and Research Alliance. DeWitt EM, et al. Arthritis Care Res (Hoboken). 2012 Jul;64(7):1001-10. doi: 10.1002/acr.21625. Arthritis Care Res (Hoboken). 2012. PMID: 22290637 Free PMC article.
Using registries to identify adverse events in rheumatic diseases.
Lionetti G, Kimura Y, Schanberg LE, Beukelman T, Wallace CA, Ilowite NT, Winsor J, Fox K, Natter M, Sundy JS, Brodsky E, Curtis JR, Del Gaizo V, Iyasu S, Jahreis A, Meeker-O'Connell A, Mittleman BB, Murphy BM, Peterson ED, Raymond SC, Setoguchi S, Siegel JN, Sobel RE, Solomon D, Southwood TR, Vesely R, White PH, Wulffraat NM, Sandborg CI. Lionetti G, et al. Pediatrics. 2013 Nov;132(5):e1384-94. doi: 10.1542/peds.2013-0755. Epub 2013 Oct 21. Pediatrics. 2013. PMID: 24144710 Free PMC article. Review.
Next-generation registries: fusion of data for care, and research.
Mandl KD, Edge S, Malone C, Marsolo K, Natter MD. Mandl KD, et al. Among authors: natter md. AMIA Jt Summits Transl Sci Proc. 2013 Mar 18;2013:164-7. eCollection 2013. AMIA Jt Summits Transl Sci Proc. 2013. PMID: 24303257 Free PMC article.
Childhood Arthritis and Rheumatology Research Alliance consensus treatment plans for new-onset polyarticular juvenile idiopathic arthritis.
Ringold S, Weiss PF, Colbert RA, DeWitt EM, Lee T, Onel K, Prahalad S, Schneider R, Shenoi S, Vehe RK, Kimura Y; Juvenile Idiopathic Arthritis Research Committee of the Childhood Arthritis and Rheumatology Research Alliance. Ringold S, et al. Arthritis Care Res (Hoboken). 2014 Jul;66(7):1063-72. doi: 10.1002/acr.22259. Arthritis Care Res (Hoboken). 2014. PMID: 24339215 Free PMC article.
Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS): architecture.
Mandl KD, Kohane IS, McFadden D, Weber GM, Natter M, Mandel J, Schneeweiss S, Weiler S, Klann JG, Bickel J, Adams WG, Ge Y, Zhou X, Perkins J, Marsolo K, Bernstam E, Showalter J, Quarshie A, Ofili E, Hripcsak G, Murphy SN. Mandl KD, et al. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):615-20. doi: 10.1136/amiajnl-2014-002727. Epub 2014 May 12. J Am Med Inform Assoc. 2014. PMID: 24821734 Free PMC article.
Medication use in juvenile uveitis patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance Registry.
Henderson LA, Zurakowski D, Angeles-Han ST, Lasky A, Rabinovich CE, Lo MS; Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry Investigators. Henderson LA, et al. Pediatr Rheumatol Online J. 2016 Feb 16;14(1):9. doi: 10.1186/s12969-016-0069-5. Pediatr Rheumatol Online J. 2016. PMID: 26879972 Free PMC article. Clinical Trial.
Supporting Multi-sourced Medication Information in i2b2.
Klann JG, Pfiffner PB, Natter MD, Conner E, Blazejewski P, Murphy SN, Mandl KD. Klann JG, et al. Among authors: natter md. AMIA Annu Symp Proc. 2015 Nov 5;2015:747-55. eCollection 2015. AMIA Annu Symp Proc. 2015. PMID: 26958210 Free PMC article.
65 results