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Females experience a more severe disease course in Batten disease.
Cialone J, Adams H, Augustine EF, Marshall FJ, Kwon JM, Newhouse N, Vierhile A, Levy E, Dure LS, Rose KR, Ramirez-Montealegre D, de Blieck EA, Mink JW. Cialone J, et al. Among authors: adams h. J Inherit Metab Dis. 2012 May;35(3):549-55. doi: 10.1007/s10545-011-9421-6. Epub 2011 Dec 14. J Inherit Metab Dis. 2012. PMID: 22167274 Free PMC article.
Methodology of clinical research in rare diseases: development of a research program in juvenile neuronal ceroid lipofuscinosis (JNCL) via creation of a patient registry and collaboration with patient advocates.
de Blieck EA, Augustine EF, Marshall FJ, Adams H, Cialone J, Dure L, Kwon JM, Newhouse N, Rose K, Rothberg PG, Vierhile A, Mink JW; Batten Study Group. de Blieck EA, et al. Among authors: adams h. Contemp Clin Trials. 2013 Jul;35(2):48-54. doi: 10.1016/j.cct.2013.04.004. Epub 2013 Apr 26. Contemp Clin Trials. 2013. PMID: 23628560 Free PMC article.
Blood pressure and school performance.
Lande MB, Kupferman JC, Hooper SR, Pavlakis SG, Batisky DL, Adams HR. Lande MB, et al. Psychosom Med. 2014 Feb;76(2):163-6. doi: 10.1097/PSY.0000000000000033. Epub 2014 Jan 26. Psychosom Med. 2014. PMID: 24470132 Free PMC article. No abstract available.
1,996 results