Precocious puberty in children with neurofibromatosis type 1

J Pediatr. 1995 Mar;126(3):364-7. doi: 10.1016/s0022-3476(95)70449-3.

Abstract

We undertook a comprehensive study of children with neurofibromatosis type 1 (NF-1) cared for in a large multidisciplinary clinic to determine the prevalence of precocious puberty and its relationship to optic pathway tumors (OPTs). Precocious puberty was diagnosed in 7 of 219 children with NF-1 (5 boys and 2 girls) examined between Jan. 1, 1985, and April 20, 1993. All seven children had OPTs involving the optic chiasm; they represented 39% of children with NF-1 and chiasmal tumors (95% confidence interval, 17% to 64%). Eleven prepubertal children (aged 2 to 10 years) with NF-1 and OPTs, and age- and sex-matched NF-1 control subjects without OPTs, underwent luteinizing hormone-releasing hormone (LH-RH) stimulation tests. Two boys with OPTs had pubertal luteinizing hormone (LH) responses, and testosterone levels > 10 ng/dl. Basal LH levels were also elevated in these two boys when tested with a very sensitive immunochemiluminometric assay. None of the children without an OPT had either a pubertal response to LH-RH or an elevated basal LH level. We conclude that precocious puberty in children with NF-1 is found exclusively in those who have OPTs involving the optic chiasm; it is a common complication in those children. With the use of a highly sensitive LH assay, biochemical evidence of hypothalamic-pituitary-gonadal axis activation may be demonstrated, even without provocative testing.

Publication types

  • Clinical Trial
  • Controlled Clinical Trial
  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Child
  • Child, Preschool
  • Cranial Nerve Neoplasms / blood
  • Cranial Nerve Neoplasms / complications*
  • Cranial Nerve Neoplasms / physiopathology
  • Estradiol / blood
  • Female
  • Follicle Stimulating Hormone / blood
  • Gonadotropin-Releasing Hormone / pharmacology
  • Humans
  • Hypothalamo-Hypophyseal System / drug effects
  • Luteinizing Hormone / blood
  • Male
  • Neurofibromatosis 1 / blood
  • Neurofibromatosis 1 / complications*
  • Neurofibromatosis 1 / physiopathology
  • Optic Nerve Diseases / blood
  • Optic Nerve Diseases / complications*
  • Optic Nerve Diseases / physiopathology
  • Pituitary-Adrenal System / drug effects
  • Prospective Studies
  • Puberty, Precocious / blood
  • Puberty, Precocious / etiology*
  • Puberty, Precocious / physiopathology
  • Retrospective Studies
  • Testosterone / blood

Substances

  • Gonadotropin-Releasing Hormone
  • Testosterone
  • Estradiol
  • Luteinizing Hormone
  • Follicle Stimulating Hormone