Cobuilding patient and public capacity in knowledge synthesis: designed and delivered by patient and public partners for patient and public partners

Maureen Smith; Janet Gunderson; Sharmila Sreetharan; Sabrina Chaudhry; Clara Tam; Safa Al-Khateeb; Areti-Angeliki Veroniki; Sharon E Straus; Andrea C Tricco; Wasifa Zarin

doi:10.1016/j.jclinepi.2024.111635

Cobuilding patient and public capacity in knowledge synthesis: designed and delivered by patient and public partners for patient and public partners

J Clin Epidemiol. 2024 Dec 9:179:111635. doi: 10.1016/j.jclinepi.2024.111635. Online ahead of print.

Affiliations

¹ SPOR Evidence Alliance, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Unity Health Toronto, Toronto, Ontario, Canada.
² SPOR Evidence Alliance, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Unity Health Toronto, Toronto, Ontario, Canada; Institute of Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada.
³ SPOR Evidence Alliance, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Unity Health Toronto, Toronto, Ontario, Canada; Institute of Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada; Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
⁴ SPOR Evidence Alliance, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Unity Health Toronto, Toronto, Ontario, Canada; Epidemiology Division and Institute of Health Policy, Management, and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada. Electronic address: Andrea.tricco@unityhealth.to.

PMID: 39653088
DOI: 10.1016/j.jclinepi.2024.111635

Abstract

Objectives: To describe the Strategy for Patient-Oriented Research Evidence Alliance's cocreation and evaluation of two capacity building courses on knowledge synthesis for patient and public partners.

Study design and setting: Two 3-week courses were collaboratively designed by, with, and for patient and public partners on engagement in knowledge synthesis. The first course, offered virtually in 2021, focused on patient and public engagement in systematic reviews and rapid reviews. The second course was offered virtually in 2022 with an expanded scope covering the most common type of knowledge synthesis (eg, systematic reviews with or without meta-analysis, scoping reviews, overview of reviews) under systematic, rapid, and living review contexts.

Results: A total of 46 patient and public learners were trained across the two courses. Learners represented 11 provinces and territories in Canada, with two-third of learners residing in Ontario across both years (2021: 39%; 2022: 35%). Weekly formative evaluations and a summative evaluation were conducted for both courses. The evaluations revealed that the majority of respondents agreed (2021: 91%; 2022: 88%) that they achieved their learning goals and that their overall learning experience was valuable (2021: 95%; 2022: 89%).

Conclusion: The capacity-building courses in 2021 and 2022 successfully engaged 46 patient and public partners across Canada. As a result, these partners are now well-prepared to participate in knowledge synthesis activities. The positive experiences from respondents indicated successful and satisfactory experiences and that similar capacity building opportunities should be offered to continue to address research capacity gaps.

Plain language summary: In 2021 and 2022, the Strategy for Patient-Oriented Research Evidence Alliance adopted a cocreation approach to deliver two courses on patient and public engagement in knowledge synthesis for patient and public partners. These courses aimed to build confidence and provide foundational knowledge for patient and public partner engagement in knowledge synthesis. A total of 46 learners were trained across the two courses. Formal evaluations revealed that the courses were effective in meeting their learning goals. Feedback suggests a continued need and opportunity to offer similar courses designed by, with, and for patient and public partners.

Keywords: COVID-19; Cocreation; Education; Evidence synthesis; Knowledge synthesis; Patient and public engagement; Patient and public involvement.