Individualized participatory care planning for individuals with intellectual and developmental disabilities: a qualitative descriptive study

BMC Health Serv Res. 2024 Dec 5;24(1):1547. doi: 10.1186/s12913-024-12009-5.

Abstract

Background: Goal setting for persons within health and social care environments can be a challenging task; although health and social care settings aim to address a person's care needs, the literature tends to focus on health. Person-centred care should encompass the goals/needs/wants of the person, whether these goals focus on career, relationship, and/or health domains. To understand how a person-centred participatory goal setting process is carried out in a care environment, we used an integrated knowledge translation approach.

Methods: We conducted 11 semi-structured interviews with community-care staff to understand a person-centred planning process, including key components and impacts.

Results: The interviews provide a thorough understanding of an implemented approach to person-centred plans, including its creation, implementation, and benefits (for the person-supported, family, friends, and staff). Person-centred plans provide a map with which to plan activities based on a persons' goals, interests, and capacities, and have positive impacts for the person-supported, family, friends, and staff.

Conclusions: Our study highlights how a community-care organization can facilitate person-centred services through person-centred plans and has implications for wider uptake of person-centred plans in community-care organizations.

Keywords: Community care; Integrated knowledge translation; Intellectual and developmental disabilities; Person-centred care; Person-centred planning; Social care.

MeSH terms

  • Adult
  • Developmental Disabilities* / psychology
  • Developmental Disabilities* / therapy
  • Female
  • Humans
  • Intellectual Disability* / therapy
  • Interviews as Topic
  • Male
  • Patient Care Planning*
  • Patient-Centered Care* / organization & administration
  • Qualitative Research*