"A Person Taking Care of the Sick is also a Sick Person": Challenges and Consequences of Hospital-Based Informal Caregiving

Inquiry. 2024 Jan-Dec:61:469580241302005. doi: 10.1177/00469580241302005.

Abstract

Informal caregivers support relatives in healthcare facilities globally. However, their involvement in hospitalization care while residing in and around the hospital is more prevalent in under-resourced settings. This article examined the challenges and multifaceted consequences of hospital-based informal caregiving in a Nigerian tertiary health facility. The study adopted a non-experimental exploratory research design and ethnographic and qualitative techniques were used to collect data from 75 participants, comprising 21 informal caregivers, 15 inpatients, 36 hospital staff, and 3 ad-hoc/paid caregivers. The challenges identified include: physical health effects and infection risks; livelihood and economic impact; mental health effects; inadequate access to basic services; exposure to safety risks and violence; conflict and barriers within the health system; and social impact. These challenges have negative consequences on informal caregivers, including heightening their vulnerability to poor health and burdening them economically and socially. Informal caregivers play a crucial role in under-resourced settings. Policymakers should create a supportive healthcare environment that meets their needs, ultimately improving the overall quality of care provided in tertiary health facilities.

Keywords: health systems; hospital-based caregiving; hospitalization; informal caregivers; lived experiences.

MeSH terms

  • Adult
  • Aged
  • Anthropology, Cultural
  • Caregivers* / psychology
  • Female
  • Health Services Accessibility
  • Hospitalization
  • Humans
  • Male
  • Mental Health
  • Middle Aged
  • Nigeria
  • Qualitative Research