Online support groups for family caregivers: A qualitative exploration of social support and engagement

Abstract

Background: This qualitative research explored family caregivers' engagement and social support in a single online support group (OSG). It sought to answer two research questions: Q1: Was social support evident in the OSG? If so what types and how did these types relate to engagement? Q2: Were elements from the Context, Content and Delivery conceptual framework evident in the OSG? If so, what were the key elements of this group?

Methods: Eighteen semi-structured interviews were carried out with members of a family caregiver OSG in Ireland. Data were analysed using deductive qualitative analysis with a codebook created from one typology of social support and the Context, Content and Delivery conceptual framework for engagement in web-based technologies.

Findings: For Q1, all types of social support were generated in the OSG. All had a positive impact on engagement. Informational support (17/18 respondents) and emotional support (15/18 respondents) were the highest support experienced by the group. For Q2, we found evidence for 11 key elements of the conceptual framework. Myriad sub-elements had positive, negative and mixed impacts on engagement. These elements generally related to positive developments of social support by the respondents.

Conclusion: Drawing together the findings, we present a new framework, the Journey of Engagement and Support in Online Support Groups for Family Caregivers. This maps the stages for engagement and support in an OSG and can be used by practitioners for running OSG and researchers to generate testable hypotheses about the relationship between social support and engagement.

Keywords: Facebook; NVivo; Online support groups; engagement; family caregivers; framework for engagement; qualitative analysis; social support.