Embedding Authorship Identity into a Portal-Based Agenda Setting Intervention to Support Older Adults and Care Partners

Hillary D Lum; Jessica Cassidy; Chen-Tan Lin; Catherine M DesRoches; Prajakta Shanbhag; Kelly T Gleason; Danielle S Powell; Danielle Peereboom; Catherine A Riffin; Jamie M Smith; Aleksandra Wec; Jennifer L Wolff

doi:10.1007/s11606-024-09056-3

Embedding Authorship Identity into a Portal-Based Agenda Setting Intervention to Support Older Adults and Care Partners

J Gen Intern Med. 2024 Oct 1. doi: 10.1007/s11606-024-09056-3. Online ahead of print.

Authors

Affiliations

¹ Division of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, 12631 E. 17Th Ave B-179, Aurora, CO, 80045, USA. hillary.lum@ucdenver.edu.
² Division of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, 12631 E. 17Th Ave B-179, Aurora, CO, 80045, USA.
³ Division of General Internal Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, CO, USA.
⁴ OpenNotes/Beth Israel Deaconess Medical Center, Department of Medicine, Harvard Medical School, Boston, MA, USA.
⁵ Johns Hopkins University School of Nursing, Baltimore, MD, USA.
⁶ Department of Hearing and Speech Sciences, University of Maryland, College Park, MD, USA.
⁷ Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
⁸ Division of Geriatrics and Palliative Medicine, Department of Medicine, Weill Cornell Medicine, New York, NY, USA.

PMID: 39354253
DOI: 10.1007/s11606-024-09056-3

Abstract

Background: Patients, families, and clinicians increasingly communicate through patient portals. Due to potential for multiple authors, clinicians need to know who is communicating with them. OurNotes is a portal-based pre-visit agenda setting questionnaire. This study adapted OurNotes to include a self-identification question to help clinicians interpret information authored by nonpatients.

Objectives: To describe adapted OurNotes use and clinician feedback to inform broader implementation.

Design: Evaluation of adapted OurNotes in a geriatric practice.

Participants: Older adults with a portal account and a clinic visit; eight clinicians were interviewed.

Intervention: OurNotes adaptation to clarify whether the author is the patient, the patient with help, or a nonpatient.

Approach: Cross-sectional chart review of OurNotes completion, patient characteristics, and visit topics by author type. Clinician interviews explored experiences with OurNotes.

Results: Out of 503 visits, 134 (26%) OurNotes questionnaires were completed. Most respondents (n = 92; 69%) identified as the patient, 18 (14%) identified as the patient with help, and 24 (17%) identified as someone other than the patient. On average, patients who authored their own OurNotes were younger (80.9 years) compared to patients who received assistance (85.8 years), or patients for whom someone else authored OurNotes (87.8 years) (p < 0.001). A diagnosis of cognitive impairment was present among 20% of patients who self-authored OurNotes vs. 79% of patients where someone else authored OurNotes (p < 0.001). Topics differed when OurNotes was authored by patients vs. nonpatients. Symptoms (52% patient vs. 83% nonpatient, p = 0.004), community resources (6% vs. 42%, p < 0.001), dementia (5% vs. 21%, p = 0.009), and care partner concerns (1% vs. 12%, p = 0.002) were more often mentioned by nonpatients. Clinicians valued the self-identification question for increasing transparency about who provided information.

Conclusions: A self-identification question can identify nonpatient authors of OurNotes. Future steps include evaluating whether transparency improves care quality, especially when care partners are involved.

Keywords: OurNotes; agenda setting; caregiver; patient portal; pre-visit planning.

Abstract

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