Family caregivers' perceptions of the quality of primary healthcare services for people with disabilities: a cross-sectional study

Rev Assoc Med Bras (1992). 2024 Sep 16;70(9):e20240778. doi: 10.1590/1806-9282.20240778. eCollection 2024.

Abstract

Background: How do caregivers of people with disabilities perceive the quality of health services in primary healthcare?

Objective: The objective of this study was to show the quality of health services for people with disabilities in primary healthcare, based on the perceptions of family caregivers.

Methods: This is a cross-sectional study. During data collection, 49 family caregivers who use the center were interviewed. The assessment instruments used were the Socio-Economic and Demographic Questionnaire and the PCATool-Brasil (Primary Care Assessment Tool), in the reduced adult and child versions, to assess the level of essential and derived characteristics of primary healthcare.

Results: Women were the main caregivers (40; 82%), and the main disability was mental (28; 58%). The highest scores were observed in affiliation (100%), utilization (73.4%), and information system (83.7%). The lowest scores were found in longitudinal (26.5%), integration of care, available services, services provided (28.6%), and derived scores (28.6-22.4%) related to family guidance and community guidance. The population showed a low orientation toward primary healthcare, with a high total score (22.4%). The economic situation showed a positive association (p=0.017).

Conclusion: According to the characteristics of primary healthcare, care is fragmented and disjointed and does not meet the needs of people with disabilities and their caregivers.

MeSH terms

  • Adult
  • Aged
  • Brazil
  • Caregivers* / psychology
  • Cross-Sectional Studies
  • Female
  • Humans
  • Male
  • Middle Aged
  • Perception
  • Persons with Disabilities*
  • Primary Health Care* / standards
  • Primary Health Care* / statistics & numerical data
  • Quality of Health Care*
  • Socioeconomic Factors*
  • Surveys and Questionnaires
  • Young Adult

Grants and funding

Funding: this study was partially supported by the Coordination for the Improvement of Higher Education Personnel (CAPES, code 001). The funding source had no role in the study design, collection, analysis, interpretation of data, writing of the report, or in the decision to submit the article for publication.