Co-Creation of a Novel Childhood Onset Rare Disease Self-Care Support Tool

Acad Pediatr. 2024 Mar;24(2):369-372. doi: 10.1016/j.acap.2023.09.013. Epub 2023 Sep 22.
No abstract available

Keywords: chronic disease; rare disease; self-care; well-being.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Child
  • Humans
  • Rare Diseases* / therapy
  • Self Care*