ATP6V1B2-related disorders featuring Lennox-Gastaut-syndrome: A case-based overview

Brain Dev. 2023 Nov;45(10):588-596. doi: 10.1016/j.braindev.2023.07.004. Epub 2023 Aug 25.

Abstract

Background: ATP6V1B2 (ATPase, H+ transporting, lysosomal VI subunit B, isoform 2) encodes for a subunit of a ubiquitous transmembrane lysosomal proton pump, implicated in the acidification of intracellular organelles and in several additional cellular functions. Variants in ATP6V1B2 have been related to a heterogeneous group of multisystemic disorders sometimes associated with variable neurological involvement. However, our knowledge of genotype-phenotype correlations and the neurological spectrum of ATP6V1B2-related disorders remain limited due to the few numbers of reported cases.

Case study: We hereby report the case of an 18-year-old male Sicilian patient affected by a global developmental delay, skeletal abnormalities, and epileptic encephalopathy featuring Lennox-Gastaut syndrome (LGS), in which exome sequencing led to the identification of a novel de novo variant in ATP6V1B2 (NM_001693.4: c.973G > C, p.Gly325Arg).

Conclusions: Our report provides new insights on the inclusion of developmental epileptic encephalopathies (DEEs) within the continuum group of ATP6V1B2-related disorders, expanding the phenotypic and molecular spectrum associated with these conditions.

Keywords: ATP6V1B2; ATP6V1B2-related disorders; Deafness-onycodystrophy-osteodystrophy-mental retardation-seizures; Developmental epileptic encephalopathy; Dominant deafness-onycodystrophy; Lennox-Gastaut syndrome; Zimmermann-Laband syndrome 2.

Publication types

  • Case Reports

MeSH terms

  • Adenosine Triphosphatases
  • Adolescent
  • Epilepsy* / genetics
  • Epilepsy, Generalized*
  • Genetic Association Studies
  • Humans
  • Lennox Gastaut Syndrome* / genetics
  • Male
  • Vacuolar Proton-Translocating ATPases* / genetics

Substances

  • Adenosine Triphosphatases
  • ATP6V1B2 protein, human
  • Vacuolar Proton-Translocating ATPases