An investigation of vascular anomalies centers' transition of care practices

Neha Kinariwalla; Margaret E Scollan; Laura E Levin; Esteban Fernandez Faith; Margaret T Lee; Julie Powell; Eulàlia Baselga; Megha M Tollefson; Christine T Lauren; Kimberly D Morel; Maria C Garzon

doi:10.1111/pde.15391

An investigation of vascular anomalies centers' transition of care practices

Pediatr Dermatol. 2023 Sep-Oct;40(5):866-868. doi: 10.1111/pde.15391. Epub 2023 Jul 12.

Affiliations

¹ Columbia University Irving Medical Center, New York, New York, USA.
² Nationwide Children's Hospital and The Ohio State University College of Medicine, Ohio, USA.
³ CHU-Sainte Justine, Montreal, Canada.
⁴ SJD Barcelona Children's Hospital, Barcelona, Spain.
⁵ Mayo Clinic and Mayo Clinic Children's Center, Rochester, Minnesota, USA.

PMID: 37437894
DOI: 10.1111/pde.15391

Abstract

This study aims to examine transition of care (TOC) practices of multidisciplinary vascular anomalies centers (VACs). Thirty-seven of 71 VAC leaders to whom the survey was sent completed the questionnaire. TOC and transfer practices varied with only 16% of VACs having TOC programs. The most frequently cited barriers to developing a TOC program were lack of resources and difficulty finding expert adult providers.

Keywords: health care delivery; vascular malformation.

MeSH terms

Adult
Humans
Patient Transfer*
Surveys and Questionnaires
Vascular Malformations* / diagnosis
Vascular Malformations* / therapy