[Patient partnership: sharing experience in sickle cell vaso-occlusive crisis]

Abstract

The patient partnership is a new approach in which the patient, through his knowledge acquired from his experience with the disease, is a stakeholder in decisions about care, the organization of the health system and choices in terms of health policy. A team from the Blois hospital (41) was able to share the experience of a patient partnership during the analysis of a complex medical situation with a young man with sickle cell disease in a vaso-occlusive crisis. She reports here this new and enriching experience.

Keywords: cooperation; coopération; crise vaso-occlusive; drépanocytose; démocratie sanitaire; health democracy; partenariat patient; patient partnership; sickle cell disease; vaso-occlusive crisis.