The National Hemophilia Foundation's State of the Science Research Summit: the foundation of a national research blueprint for inherited bleeding disorders

Expert Rev Hematol. 2023 Mar;16(sup1):1-5. doi: 10.1080/17474086.2023.2178412.

Authors

Leonard A Valentino^{1

2}, Michelle L Witkop¹, Maria E Santaella¹, Donna DiMichele^{3

4}, Michael Recht⁵

Affiliations

¹ National Hemophilia Foundation, New York, NY, USA.
² Internal Medicine and Pediatrics, Rush University, Chicago, Il, USA.
³ Donna DiMichele Consulting, LLC, Washington DC, MD, USA.
⁴ Department of Pediatrics, Weill Cornell Medical College, New York, NY, USA.
⁵ American Thrombosis and Hemostasis Network, Rochester, NY, USA.

PMID: 36920858
DOI: 10.1080/17474086.2023.2178412

No abstract available

Keywords: Bleeding disorder; National Hemophilia Foundation; blueprint; community; health equity; patient-centric; research.

Publication types

Editorial
Research Support, Non-U.S. Gov't
Research Support, N.I.H., Extramural

MeSH terms

Hemophilia A* / diagnosis
Hemophilia A* / genetics
Hemophilia A* / therapy
Humans
Medicine*