[Caregivers' experiences with extreme prematurity]

Abstract

Neonatal intensive care units receive very immature premature newborns. Mortality and morbidity rates remain high in this particularly fragile population. Caregivers involved with the child and his or her parents may experience moral distress. There are few studies on the experience of caregivers in these situations. Training, service architecture and sharing of experiences with specifically trained psychologists can improve this experience in these highly technical services.

Keywords: caregiver experience; neonatal care unit; neonatal resuscitation; prematurity; prématurité; psychologist; psychologue; réanimation néonatale; unité de soin néonatal; vécu du soignant.