Long-term follow-up of epidermolysis bullosa in real practice shows stability of the Epidermolysis Bullosa Disease Activity and Scarring Index and improvement with some off-label therapies

JAAD Int. 2022 Sep 5:9:105-107. doi: 10.1016/j.jdin.2022.07.008. eCollection 2022 Dec.

Genevieve Ho¹, Matthew Gibson^{1

2}, Nooshafarin Kazemikhoo^{1

2}, Dedee F Murrell^{1

2

3}

¹ Department of Dermatology, St George Hospital, Sydney, Australia.
² University of New South Wales, Faculty of Medicine and Health, Sydney, Australia.
³ The George Institute for Global Health, Sydney, Australia.

No abstract available

Keywords: bullous disease; disease severity; epidermolysis bullosa; hereditary blistering disorders; interventions; outcomes; photobiomodulation.