Patients' appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Int J Qual Stud Health Well-being. 2021 Dec;16(1):2005760. doi: 10.1080/17482631.2021.2005760.

Abstract

Purpose: To assess fibromyalgia patients' experiences and appraisals about a multidisciplinary intervention programme, in Catalonia's primary care, regarding its format and contents, benefits, and health impact in the short and long term.

Method: Qualitative interpretative research design through hermeneutic phenomenology perspective. Two focus groups discussions were conducted in February and July 2020. The purposive heterogeneous sample included 19 fibromyalgia patients who attended a multicomponent programme. In addition, thematic analysis on the verbatims was performed.

Results: Findings were organized into five main domains with an explanatory theme each. Overall, the informants valued the programme as a positive experience due to its holistic approach, health benefits, suffering relief, group effect, and fibromyalgia legitimacy promotion. Detected improvable aspects focused on extending the timeframe, including family members as beneficiaries, deepening the thematic contents, and getting regular access to this healthcare service. Furthermore, the intervention was considered feasible to be incorporated into usual clinical care.

Conclusion: the programme fulfilled users' expectations about results and procedure and showed promise as a treatment strategy to reinforce the usual practice. Our findings suggest a broad perspective on fibromyalgia patients' suffering, which urges us to adjust the intervention programme to their real health needs.

Keywords: Fibromyalgia syndrome; focus group discussions; multicomponent intervention; primary care; qualitative research.

MeSH terms

  • Family
  • Fibromyalgia* / therapy
  • Focus Groups
  • Humans
  • Primary Health Care
  • Qualitative Research

Grants and funding

This work was supported by Dr Ferran Foundation in 2017; and the Instituto de Salud Carlos III (ISCIII) in 2018 under grant PI1800943, as part of the Health Strategy Action 2017–2020 within the National Research Program; the Technical, Scientific and Innovation Research National Plan 2017–2020, and co-funded by the European Union ERDF (European Regional Development Fund). VMA was awarded a PhD scholarship by the ISCIII in 2019 under grant FI19/00254.