Mobility and quality of life among adults with 5q-spinal muscular atrophy: the influence of individual history

Tymothée Poitou; François Constant Boyer; Charlène Benoit; Jean-Baptiste Ferté; Charlotte Pineau; Redha Taiar; Amandine Rapin

doi:10.1016/j.rehab.2021.101552

Mobility and quality of life among adults with 5q-spinal muscular atrophy: the influence of individual history

Ann Phys Rehabil Med. 2022 Mar;65(2):101552. doi: 10.1016/j.rehab.2021.101552. Epub 2021 Dec 1.

Authors

Tymothée Poitou¹, François Constant Boyer², Charlène Benoit³, Jean-Baptiste Ferté¹, Charlotte Pineau³, Redha Taiar⁴, Amandine Rapin³

Affiliations

¹ University of Reims Champagne-Ardennes, Equipe Associée de Recherche 3797, rue Cognacq Jay, 51095 Reims, France.
² University of Reims Champagne-Ardennes, Equipe Associée de Recherche 3797, rue Cognacq Jay, 51095 Reims, France; Physical and Rehabilitation Medicine Department, Referral Center of Adults Neuromuscular Diseases, Sebastopol Hospital, 48 rue de Sébastopol, 51092 Reims, France. Electronic address: fboyer@chu-reims.fr.
³ University of Reims Champagne-Ardennes, Equipe Associée de Recherche 3797, rue Cognacq Jay, 51095 Reims, France; Physical and Rehabilitation Medicine Department, Referral Center of Adults Neuromuscular Diseases, Sebastopol Hospital, 48 rue de Sébastopol, 51092 Reims, France.
⁴ University of Reims Champagne-Ardennes, MATIM, 51100 Reims, France.

PMID: 34273571
DOI: 10.1016/j.rehab.2021.101552

No abstract available

Keywords: adult spinal muscular atrophy; economics; infantile spinal muscular atrophy; mobility limitation; quality of life; rasch measurement theory; value of life.

Publication types

Letter

MeSH terms

Adult
Humans
Muscular Atrophy, Spinal*
Quality of Life*