Endometriosis in Canada: It Is Time for Collaboration to Advance Patient-Oriented, Evidence-Based Policy, Care, and Research

Kate J Wahl; Paul J Yong; Philippa Bridge-Cook; Catherine Allaire; EndoAct Canada

doi:10.1016/j.jogc.2020.05.009

Endometriosis in Canada: It Is Time for Collaboration to Advance Patient-Oriented, Evidence-Based Policy, Care, and Research

J Obstet Gynaecol Can. 2021 Jan;43(1):88-90. doi: 10.1016/j.jogc.2020.05.009. Epub 2020 Jun 2.

Authors

Kate J Wahl¹, Paul J Yong¹, Philippa Bridge-Cook², Catherine Allaire³; EndoAct Canada

Affiliations

¹ Department of Obstetrics and Gynaecology, University of British Columbia, Vancouver, BC.
² The Endometriosis Network Canada, Toronto, ON.
³ Department of Obstetrics and Gynaecology, University of British Columbia, Vancouver, BC. Electronic address: callaire2@cw.bc.ca.

PMID: 32753352
DOI: 10.1016/j.jogc.2020.05.009

Abstract

Endometriosis is an enigmatic, painful, complex disease that affects approximately 1 million people in Canada. The disease can involve multiple organ systems, often resulting in debilitating chronic pain and infertility. Social, medical, geographic, and other factors are implicated in years-long diagnostic delays and may limit access to care. An integrated approach from bench to bedside to community is urgently required. A pan-Canadian collaboration among patients, clinicians and researchers will improve endometriosis awareness, provide best practices, and link research across Canada.

Keywords: community-based participatory research; endometriosis; evidence-based medicine; health policy; health services; patient-centered care.

Publication types

Practice Guideline

MeSH terms

Canada
Cooperative Behavior
Endometriosis* / diagnosis
Endometriosis* / therapy
Evidence-Based Practice*
Female
Health Policy*
Humans
Infertility*
Interprofessional Relations
Patient-Centered Care*