Engaging Patients and Families to Help Research Inform and Advance Patient and Family-Centered Care in Critical Care Medicine

Abstract

Intensive care unit (ICU) patient, and family member engagement is evolving in both critical care medicine practice and research. The results of two qualitative critical care research projects led by ICU survivors and family members show how patient-partner research training can inform the critical care community of meaningful priorities in the traumatic ICU context. The resulting creation of a prioritized list of critical care research topics builds further on the construct of patient-centered care.

Keywords: Critical care medicine; Engagement; Family members; Intensive care unit; Patient centered and family centered; Patient-oriented research; Patients; Research.