'Well, I knew this already' - explaining personal genetic risk information through narrative meaning-making

Sociol Health Illn. 2020 Mar;42(3):496-509. doi: 10.1111/1467-9566.13018. Epub 2019 Oct 27.

Abstract

This article presents results from a Finnish focus group's study conducted among participants of a project called GeneRISK, in which the participants received a personal risk score for having a cardiovascular event based on genetic analysis, lifestyle and laboratory results. In the discussions, interpretations of the genetic risk score and its meaning were incorporated into personal narratives of health and illness. We argue that instead of serving as an explanation for health and illness, which can help guide people's lives and choices, the genetic risk information became an object of explanation. Therefore, the risk information did not create new conceptions of personal risk, nor did it generate enough power to push people to change their lifestyles. Instead, the risk information was used to strengthen the existing impression of personal risk and the narrative of personal health and illness.

Keywords: biographical disruption; cardiovascular disease; focus groups; genetic risk; lifestyle; narratives.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Finland
  • Focus Groups
  • Genetic Predisposition to Disease*
  • Humans
  • Narration*
  • Risk Assessment