Strong increase of leukocyte apha-galactosidase A activity in two male patients with Fabry disease following oral chaperone therapy

Mol Genet Genomic Med. 2019 Sep;7(9):e894. doi: 10.1002/mgg3.894. Epub 2019 Aug 8.

Abstract

Background: Fabry disease (OMIM 301500) is an X-linked disorder caused by alpha-galactosidase A (α-Gal A) deficiency. The administration of a pharmacologic chaperone (migalastat) in Fabry patients with amenable mutations has been reported to improve or stabilize organ damages and reduce lyso-Gb3 plasma level. An increase of α-Gal A activity has been observed in vitro in cells expressing amenable GLA mutations when incubated with migalastat. The impact of the drug on α-Gal A in vivo activity has been poorly studied.

Methods: We conducted a retrospective analysis of two unrelated male Fabry patients with p.Asn215Ser (p.N215S) variant.

Results: We report the important increase of α-Gal A activity in blood leukocytes reaching normal ranges of activity after about 1 year of treatment with migalastat. Cardiac parameters improved or stabilized with the treatment.

Conclusion: We confirm in vivo the effects of migalastat that have been observed in N215S carriers in vitro. The increase of α-Gal A activity may be the strongest marker for biochemical efficacy. The normalization of enzyme activity could become the new therapeutic target to achieve.

Keywords: Fabry disease; alpha-galactosidase A; cardiomyopathy; leukocytes; migalastat.

Publication types

  • Case Reports
  • Clinical Trial

MeSH terms

  • 1-Deoxynojirimycin / administration & dosage
  • 1-Deoxynojirimycin / analogs & derivatives*
  • Administration, Oral
  • Amino Acid Substitution
  • Fabry Disease* / drug therapy
  • Fabry Disease* / enzymology
  • Fabry Disease* / genetics
  • Humans
  • Leukocytes / enzymology*
  • Male
  • Mutation, Missense*
  • Retrospective Studies
  • alpha-Galactosidase / genetics
  • alpha-Galactosidase / metabolism

Substances

  • 1-Deoxynojirimycin
  • migalastat
  • alpha-Galactosidase