The Ariane-IPF ERS Clinical Research Collaboration: seeking collaboration through launch of a federation of European registries on idiopathic pulmonary fibrosis
Eur Respir J. 2019 May 23;53(5):1900539.
doi: 10.1183/13993003.00539-2019.
Print 2019 May.
1 National Reference Centre for Rare Pulmonary Diseases, Louis Pradel Hospital, Hospices Civils de Lyon, UMR 754, Claude Bernard University Lyon 1, Lyon, France.
2 Sorbonne Université and INSERM, Epidemiology of Allergic and Respiratory Diseases Dept (EPAR), Pierre Louis Institute of Epidemiology and Public Health (IPLESP UMRS 1136), Saint-Antoine Medical School, Paris, France.
3 Universities of Giessen and Marburg Lung Center (UGMLC), Giessen, Germany.
4 European Idiopathic Pulmonary Fibrosis and Related Disorders Federation, Gentbrugge, Belgium.
5 European Reference Network for rare lung diseases (ERN-LUNG), and Center for interstitial and rare lung diseases, Pneumology and respiratory critical care medicine, Thoraxklinik, University of Heidelberg, and Translational Lung Research Center Heidelberg, Member of the German Center for Lung Research (DZL), Heidelberg, Germany.
6 European Lung Foundation, Sheffield, UK.
7 Dept of Pulmonology, Hannover Medical School, Hannover, Germany.
8 Rare Urn, a division of Soft/Export Ltd, Dublin, Ireland.
9 Unità Operativa Complessa di Pneumologia, Fondazione Policlinico Universitario A. Gemelli IRCCS, Università Cattolica del Sacro Cuore, Rome, Italy.
10 Respiratory Disease Unit, Dept of Cardiac, Thoracic, Vascular Sciences and Public Health, University of Padua, Padua, Italy.
11 Hospital Universitario La Princesa, Madrid, Spain.
12 Academic Centre for Interstitial Lung Diseases, Dept of Respiratory Medicine, Erasmus MC, University Medical Centre Rotterdam, Rotterdam, The Netherlands.
13 Interstitial lung disease unit, Dept of Respiratory Medicine, University Hospitals Leuven, Leuven, Belgium.
14 Reference Centre for Rare Pulmonary Diseases, Université Paris Diderot, Inserm U1152, Laboratoire d'Excellence Inflamex, Assistance Publique-Hôpitaux de Paris, Hôpital Bichat, Service de Pneumologie A, Département Hospitalo-Universitaire FIRE, Paris, France.