Sudoscan in the evaluation and follow-up of patients and carriers with TTR mutations: experience from an Italian Centre

Amyloid. 2018 Dec;25(4):242-246. doi: 10.1080/13506129.2018.1545640. Epub 2019 Jan 14.

Abstract

Objective: To evaluate the utility of Sudoscan as possible marker of disease progression and disease onset in a cohort of hereditary ATTR amyloidosis (hATTR amyloidosis) polyneuropathy patients and carriers.

Patients and methods: We regularly performed different clinical scales, nerve conductions studies (NCS), and Sudoscan on a cohort of hATTR amyloidosis patients and carriers from a single centre of central Italy, a non-endemic area, in the last 2 years.

Results: About 18 hATTR amyloidosis patients and 8 asymptomatic carriers were enrolled. All patients had a neuropathy affecting large fibres, small fibres or both. Two subjects developed symptoms and neurophysiological alterations during follow-up. Sudoscan data from hand and feet inversely correlated with neuropathy severity and with disease duration. Moreover, global disease status, expressed by Kumamoto scale also inversely correlated with Sudoscan values.

Conclusions: We confirmed that Sudoscan is a reliable marker of disease progression in late-onset hATTR amyloidosis patients and we suggest its possible utility in early detection of disease in this population.

Keywords: Sudoscan; TTR; amyloid; carrier; neuropathy; patient; small fibre.

MeSH terms

  • Adult
  • Aged
  • Amyloid Neuropathies, Familial / diagnosis*
  • Amyloid Neuropathies, Familial / genetics*
  • Electrodiagnosis / methods*
  • Female
  • Follow-Up Studies
  • Galvanic Skin Response
  • Humans
  • Italy
  • Male
  • Middle Aged
  • Mutation*
  • Neural Conduction
  • Prealbumin / genetics*
  • Prognosis
  • Prospective Studies
  • Severity of Illness Index

Substances

  • Prealbumin
  • TTR protein, human

Supplementary concepts

  • Amyloidosis, Hereditary, Transthyretin-Related