Comparison of maternal beliefs about causes of autism spectrum disorder and association with utilization of services and treatments

Child Care Health Dev. 2018 Nov;44(6):916-925. doi: 10.1111/cch.12612. Epub 2018 Aug 22.

Abstract

Background: This study aimed to describe parental perceptions of the causes of autism spectrum disorder (ASD) in an ethnically diverse sample and explore whether these perceptions relate to treatment choices.

Methods: The sample consisted of White (n = 224), Hispanic (n = 85), and Asian (n = 21) mothers of a child with ASD. A mixed methods approach was used in this secondary analysis focusing on parental perceptions about the causes of ASD and the relationship of these to utilization of services and treatment.

Results: Environmental and genetic factors were most often believed to be the cause or one of the causes of ASD by mothers across all ethnic groups studied. Asian mothers were more likely to cite multiple causes. Environmental causes were associated with receiving 20 or more hours of autism-related services per week, whereas belief in environmental exposures and vaccines and medications as causes were associated with complementary-alternative medicine (CAM) use.

Conclusion: Our findings suggest that ethnic differences in autism causal beliefs and treatment choices may exist. Future research should be conducted to specifically confirm the findings, to understand parental motivation behind their service and treatment choices, and to gain more insight into the types, usage, and sources of CAM treatments. Clinicians can use parental autism causal beliefs in discussions about treatment recommendations.

Keywords: autism spectrum disorder; causes; parental beliefs; services and treatment.

Publication types

  • Comparative Study
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Adult
  • Autism Spectrum Disorder / etiology*
  • Case-Control Studies
  • Child, Preschool
  • Complementary Therapies / statistics & numerical data*
  • Female
  • Humans
  • Immunization / statistics & numerical data*
  • Male
  • Mothers / education
  • Mothers / psychology*
  • Patient Acceptance of Health Care / psychology
  • Patient Acceptance of Health Care / statistics & numerical data*
  • Perception
  • Qualitative Research
  • Risk Factors