[State of play of French data collections in the field of rare diseases]

MeSH terms

• Biomedical Research / organization & administration*
• Biomedical Research / standards
• Data Collection* / standards
• Databases, Factual* / standards
• Decision Making, Organizational*
• Delivery of Health Care / organization & administration
• Delivery of Health Care / standards
• Evidence-Based Practice / methods
• Evidence-Based Practice / organization & administration
• Evidence-Based Practice / standards
• France / epidemiology
• Humans
• Information Storage and Retrieval / standards
• Internationality
• Practice Guidelines as Topic
• Rare Diseases / epidemiology*
• Registries / classification
• Registries / standards