Managing the link and strengthening transition from child to adult mental health Care in Europe (MILESTONE): background, rationale and methodology

BMC Psychiatry. 2018 Jun 4;18(1):167. doi: 10.1186/s12888-018-1758-z.

Abstract

Background: Transition from distinct Child and Adolescent Mental Health (CAMHS) to Adult Mental Health Services (AMHS) is beset with multitude of problems affecting continuity of care for young people with mental health needs. Transition-related discontinuity of care is a major health, socioeconomic and societal challenge globally. The overall aim of the Managing the Link and Strengthening Transition from Child to Adult Mental Health Care in Europe (MILESTONE) project (2014-19) is to improve transition from CAMHS to AMHS in diverse healthcare settings across Europe. MILESTONE focuses on current service provision in Europe, new transition-related measures, long term outcomes of young people leaving CAMHS, improving transitional care through 'managed transition', ethics of transitioning and the training of health care professionals.

Methods: Data will be collected via systematic literature reviews, pan-European surveys, and focus groups with service providers, users and carers, and members of youth advocacy and mental health advocacy groups. A prospective cohort study will be conducted with a nested cluster randomised controlled trial in eight European Union (EU) countries (Belgium, Croatia, France, Germany, Ireland, Italy, Netherlands, UK) involving over 1000 CAMHS users, their carers, and clinicians.

Discussion: Improving transitional care can facilitate not only recovery but also mental health promotion and mental illness prevention for young people. MILESTONE will provide evidence of the organisational structures and processes influencing transition at the service interface across differing healthcare models in Europe and longitudinal outcomes for young people leaving CAMHS, solutions for improving transitional care in a cost-effective manner, training modules for clinicians, and commissioning and policy guidelines for service providers and policy makers.

Trial registration: "MILESTONE study" registration: ISRCTN ISRCTN83240263 Registered 23 July 2015; ClinicalTrials.gov NCT03013595 Registered 6 January 2017.

Keywords: Child and adolescent mental health services; Cluster randomised controlled trial; Europe; Health services research; Longitudinal cohort study; Mental health; Policy; Professional training; Transition; Youth mental health.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adolescent Health Services* / economics
  • Adolescent Health Services* / trends
  • Adult
  • Child
  • Cohort Studies
  • Cost-Benefit Analysis / methods
  • Cost-Benefit Analysis / trends
  • Europe / epidemiology
  • Female
  • Health Personnel / economics
  • Health Personnel / trends
  • Humans
  • Male
  • Mental Health Services* / economics
  • Mental Health Services* / trends
  • Mental Health* / economics
  • Mental Health* / trends
  • Multicenter Studies as Topic / economics
  • Multicenter Studies as Topic / methods
  • Patient Transfer / economics
  • Patient Transfer / methods*
  • Patient Transfer / trends
  • Prospective Studies
  • Randomized Controlled Trials as Topic / economics
  • Randomized Controlled Trials as Topic / methods
  • Surveys and Questionnaires
  • Systematic Reviews as Topic

Associated data

  • ClinicalTrials.gov/NCT03013595
  • ISRCTN/ISRCTN83240263