A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine

Judy Illes; Douglas Sipp; Erika Kleiderman; Shelly Benjaminy; Rosario Isasi; Geoff Lomax; Zubin Master; Jennifer McCormick; Ubaka Ogbogu; Vardit Ravitsky; Julie M Robillard; Fabio Rossi; Brenda Wilson; Amy Zarzeczny

doi:10.1038/s41536-017-0026-z

A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine

NPJ Regen Med. 2017 Jul 5:2:21. doi: 10.1038/s41536-017-0026-z. eCollection 2017.

Authors

Judy Illes¹, Douglas Sipp^{2

3

4}, Erika Kleiderman⁵, Shelly Benjaminy⁶, Rosario Isasi⁷, Geoff Lomax⁸, Zubin Master⁹, Jennifer McCormick¹⁰, Ubaka Ogbogu¹¹, Vardit Ravitsky¹², Julie M Robillard¹, Fabio Rossi¹³, Brenda Wilson¹⁴, Amy Zarzeczny¹⁵

Affiliations

¹ National Core for Neuroethics, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, BC Canada.
² RIKEN Center for Developmental Biology, Kobe, Japan.
³ Keio University School of Medicine, Tokyo, Japan.
⁴ Keio Global Research Institute, Tokyo, Japan.
⁵ Centre of Genomics and Policy, McGill University, Montreal, QC Canada.
⁶ National Core for Neuroethics and Department of Experimental Medicine, University of British Columbia, Vancouver, BC Canada.
⁷ John T. Macdonald Foundation Department of Human Genetics, University of Miami, Coral Gables, FL USA.
⁸ California Institute of Regenerative Medicine, Oakland, CA USA.
⁹ Alden March Bioethics Institute, Albany Medical College, Albany, NY USA.
¹⁰ Department of Humanities, Pennsylvania State College of Medicine, Hershey, PA USA.
¹¹ Faculties of Law and Pharmacy & Pharmaceutical Sciences, University of Alberta, Edmonton, AB Canada.
¹² Bioethics Program, School of Public Health, University of Montreal, Montreal, QC Canada.
¹³ Department of Medical Genetics, University of British Columbia, Vancouver, BC Canada.
¹⁴ School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, Ottawa, ON Canada.
¹⁵ Johnson Shoyama Graduate School of Public Policy, University of Regina, Regina, SK Canada.

Abstract

Regenerative medicine has attracted the interest of scientists, physicians, and patient communities, and as well as policy-makers and the broader public given related ethical, legal, and social implications. Here we examine past initiatives in the ethical, legal and social implications arena in regenerative medicine, and offer our views on actionable priorities for the future in six key areas: capacity building, policy, engagement with industry, resaerch ethics, communication, and community building.

Publication types

Review