Inaugural Conference on Incorporating Patient-Reported Outcomes and Patient Preference Information into Clinical Research, Clinical Care, and Risk-Benefit Assessments for Neurodegenerative Diseases

Affiliations

• ¹ Huntington Disease Care, Education and Research Center, Georgetown University, 2115 Wisconsin Ave., NW, Suite 120, Washington, DC, 20007, USA. jlp92@georgetown.edu.
• ² Program for Regulatory Science and Medicine, Georgetown University, 2115 Wisconsin Ave., NW, Suite 603, Washington, DC, 20007, USA.
• ³ , Philadelphia, PA, 19146, USA.
• ⁴ Center for Human Experimental Therapeutics, University of Rochester Medical Center, 265 Crittenden Blvd, Mail Stop CU 420694, Rochester, NY, 14642, USA.
• ⁵ Center for Biologics Evaluation and Research, Office of Biostatistics and Epidemiology, U.S. Food and Drug Administration, 10903 New Hampshire Ave, Silver Spring, MD, 20993, USA.
• ⁶ Galica Healthcare, 373 Bay Village Drive, Rochester, NY, 14609, USA.
• ⁷ Huntington Disease Care, Education and Research Center, Georgetown University, 2115 Wisconsin Ave., NW, Suite 120, Washington, DC, 20007, USA.
• ⁸ Voyager Therapeutics Inc., 75 Sidney Street, Cambridge, MA, 02139, USA.
• ⁹ Department of Neurology, Northwestern University Feinberg School of Medicine, 710 North Lake Shore Drive, 1126, Chicago, IL, 60611, USA.
• ¹⁰ Sterling Health IT, 42950 Tara Court, Ashburn, VA, 20147, USA.
• ¹¹ Banner Alzheimer's Institute, Banner Health, Phoenix, AZ, 85006, USA.
• ¹² , 3800 Reservoir Road, 7PHC, Washington, DC, 20007, USA.