Implementing a patient-centred outcome measure in daily routine in a specialist palliative care inpatient hospital unit: An observational study

Palliat Med. 2017 Mar;31(3):275-282. doi: 10.1177/0269216316655349. Epub 2016 Jul 11.

Abstract

Background: Gathering clinical evidence data on patients' palliative care needs is paramount to identify changes in outcomes over time and maintaining on-going quality improvement. Implementation of patient-centred outcome measures has been widely recommended. The routine use of these instruments in daily practice is challenging and not widespread.

Aim: To implement a patient-centred outcome measure in daily practice and fulfil one quality indicator: improve pain during the 72 h after admission, in at least 75% of patients.

Design: An observational prospective study. The Palliative care Outcome Scale was used at admission (T0), third day (T1) and weekly.

Setting/participants: Hospital palliative care unit with 17 individual rooms. All patients admitted to the unit were included in the study.

Results: Preliminary results ( N = 84) revealed inconsistent and missing data (14%). Symptoms were sub-optimally controlled by T1. Processes changed, and only a team member could apply Palliative care Outcome Scale. Doctors were encouraged to grasp the meaning of Palliative care Outcome Scale results for each patient. The post-pilot included 317 patients. No missing data occurred. There was an improvement in most items between T0 and T1: 'pain' and 'other symptoms' presented statistical significant differences ( p < 0.05).

Conclusion: Implementing a patient-centred outcome measure in a hospital palliative care service is feasible and improves quality of care. Controlling high pain at T0 improved (>80%) by T1. Results became more consistent and symptom control was improved overall. Patients are evaluated based on holistic domains by an interdisciplinary team and we have added a much needed measure to help guide improvement of the quality of care provided.

Keywords: Palliative care; clinical practice; implementation; outcome assessment; palliative care daily routine; patient-centred outcome measures; quality improvement.

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Female
  • Humans
  • Inpatients / statistics & numerical data*
  • Male
  • Middle Aged
  • Observational Studies as Topic
  • Outcome Assessment, Health Care / statistics & numerical data*
  • Palliative Care / organization & administration*
  • Palliative Care / statistics & numerical data*
  • Patient-Centered Care / organization & administration*
  • Patient-Centered Care / statistics & numerical data*
  • Prospective Studies
  • Quality of Health Care / statistics & numerical data*