Combination of a triple alpha-globin gene with beta-thalassemia in a gypsy family: importance of the genetic testing in the diagnosis and search for a donor for bone marrow transplantation for one of their children

BMC Res Notes. 2016 Apr 14:9:220. doi: 10.1186/s13104-016-2027-1.

Abstract

Background: The simultaneous presence of a heterozygous β-thalassemia with α-gene triplication may cause anything from a thalassemia trait to thalassemia intermedia of mild to moderate severity.

Case presentation: An 8-month-old ethnic Gypsy male infant with failure to thrive from birth, mild jaundice and splenomegaly. Clinical signs were compatible with severe microcytic anemia requiring bi-monthly blood transfusions. The β-thalassemia gene analysis found homozygous mutation IVS-I-110 (G>A) (c.93-21G>A) in intron 1 of the hemoglobin beta globin gene and a non-pathogenic sequence variant (single nucleotide polimorfism (SNP) Rs1609812). In addition, the patient had α gene triplication (ααα(anti 3.7)/αα) caused by double heterozygosity for a 3.7 kb fragment that contained only the hemoglobin alpha globin gene-2 gene. This finding led to screening and follow up in first-degree relatives, twin brothers and a sister and parents to provide them with appropriate genetic counseling. Nowadays, new horizons could open a new therapeutic management until definitive cure of these diseases through gene therapy or mutation-specific genome editing.

Conclusions: Genetic testing can provide an early diagnosis and facilitates the search for a suitable donor for transplantation.

Keywords: Alpha-globin gene triplication; Beta thalassemia major; Iron overload; Microcytic anemia; Splenomegaly; Thalassemia minor.

Publication types

  • Case Reports

MeSH terms

  • Blood Donors
  • Bone Marrow Transplantation / methods
  • Family Health
  • Female
  • Gene Duplication
  • Genetic Predisposition to Disease / ethnology
  • Genetic Predisposition to Disease / genetics
  • Genetic Testing
  • Heterozygote
  • Humans
  • Infant
  • Male
  • Multigene Family*
  • Mutation
  • Pedigree
  • Polymorphism, Single Nucleotide
  • Portugal
  • Roma / genetics*
  • alpha-Globins / genetics*
  • beta-Thalassemia / diagnosis
  • beta-Thalassemia / genetics*
  • beta-Thalassemia / therapy

Substances

  • alpha-Globins